Welcome - Lowe Syndrome Community
What is Lowe Syndrome ?
Lowe Syndrome (also known as Oculocerebrorenal syndrome, OCRS) is a rare genetic disorder seen in males from early childhood and currently there is no cure. Lowe syndrome severely affects the brain, eyes, kidneys, bones and muscles, leading to physical and mental impairment.
Source: Participating patient organizations visible below
Lowe Syndrome Resources
by RareConnect team
published 3 months ago
Rare Disease Day takes place on the last day of February each year.
The main objective of Rare Disease Day is to raise awareness amongst the gen...
published 11 months ago
On April 5, at the Auditorium "St. Paul" at the "Bambino Gesù" Children's Hospital, took place the "Second Meeting with Patient Associations." The...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.