Here's a selection of information from patients & professionals to better understand Lipoprotein Lipase Deficiency.
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LPLD/FCS is ultra-rare and under-diagnosed. Once diagnosed people can struggle to manage the restrictions it imposes and are often isolated. We provide information on symptoms and on the day-to-day experience of living with LPLD/ FCS to increase understanding of the burden placed on these individuals and those around them. We have a growing list of professionals with an interest and expertise in the condition, and information on medicine developments and treatment options.We would be grateful if you could help us