Lipoprotein Lipase Deficiency (LPLD) Community

Meet, discuss & support other patients or families living with Lipoprotein Lipase Deficiency (LPLD). Contribute to topics, or just share what's on your mind

I need help understanding Lipoprotein lipase Defeciency syndrome

Hi, I am trying to compile a list of foods that i can not eat and foods that will help my illness. can anyone help me.

SandraRC
moderator

Hi Viveka,

Welcome to the Lipoprotein Lipase Deficiency community. My name is Sandra and I work with EURORDIS as community manager on RareConnect .

We’ve moved your question from our Discussion Group section (https://www.rareconnect.org/topics) to the LPLD community, so all the questions and comments can be found on one place.

Here you can meet with other people experiences with LPLD. Feel free to ask questions here and also check the other sections of this community to read stories of the families and find interesting articles and information about LPLD (https://www.rareconnect.org/en/community/l... In Member section you can also find a map with the location of other members.

I hope that other members will join this conversation and can help you with making a list of food.

jill
moderator

Hi Viveka, my name is Jill and I'm one of the moderators. Some years ago I created a list of can eat/can't eat foods as a handy guide which is published on the HEART UK website. It's by no means conclusive but does help to point in the right direction.

If you have any questions please do post them on the forum. It would also be useful to post a profile so that others on the site can see if they feel they have anything in common with you that they might want to share.

Best wishes

https://heartuk.org.uk/files/uploads/huk_f...

This was one of my biggest struggles with my daughter's diagnosis, I would get caught up in how many foods she couldn't eat. I've posted a bunch of lists of nonfat foods that you can eat on my web site, http://lpldeficiency.blogspot.com/ as well as some of our favorite family recipes. Hope that helps!

I have a blog where I share recipes and foods that work for us:

lpldeficiency.blogspot.com/

Some posts that specifically list some foods you can eat are:

lpldeficiency.blogspot.com/2016/05/surprising-nonlow-fat-life-savers.html

lpldeficiency.blogspot.com/2015/12/dessert-ideas.html

lpldeficiency.blogspot.com/2015/12/snack-ideas.html

lpldeficiency.blogspot.com/2015/11/recipe-index.html

lpldeficiency.blogspot.com/2015/11/what-can-I-order-at-restaurant.html

SandraRC
moderator

Hi Rachel,

Thanks for sharing these links here. I am sure others will find it useful.