Leber hereditary optic neuropathy (LHON) Community

Meet, discuss & support other patients or families living with Leber hereditary optic neuropathy (LHON). Contribute to topics, or just share what's on your mind.

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Living with LHON since 1976

My sight dropped to less than 1% due to LHON in 1976. At the time it was diagnosed as Optic Atrophy cause unknown. I then did part of a Biology degree but switched to Computing. I have worked in several companies around the UK doing programming, analysis, design, project management , It consultancy.

My diagnosis was changed to LHON In the 1980s, but there was almost no info on it. I began following research and set up the first LHON HOME PAGE website in 1994

Since then I've updated the site and the latest version is at http://lhon.global/


Welcome to the LHON community

Take a moment to introduce yourself in this section. If you see a post in a language you don't know, click on the link at the end of the post to have it translated into your language.

When you have a moment, write your story through the link in your profile and share your experiences with people around the world.

Write me with any questions: team@rareconnect.org