Leber hereditary optic neuropathy (LHON) Community

Meet, discuss & support other patients or families living with Leber hereditary optic neuropathy (LHON). Contribute to topics, or just share what's on your mind

ASANOL
moderator

LHON patient advisory committee

Hi. A LHON patient advisory committee is being organized at European level. Different patient organisations are going to participate but we want to know your aspirations. What aspects are you concerned with regarding treatments? Do you think you don't have all the information? Are the doctors in your area well informed?