Welcome - Leber hereditary optic neuropathy (LHON) Community

What is Leber hereditary optic neuropathy (LHON) ?

Leber's hereditary optic neuropathy (LHON) is a mitochondrial neurodegenerative disease affecting the optic nerve and often characterized by sudden vision loss in young adult carriers.

Source Orphanet

Leber hereditary optic neuropathy (LHON) Resources

More members stories

Latest Member Stories

My life with LHON

by RareConnect team published 8 months ago
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I was wondering that maybe it could be interesting to explain the way we DO NOT see, to talk about the blurry spot, like a TV with bad signal. Then...

Leber Hereditary Optic Neuropathy (LHON)

by russellgww published 8 months ago

In June 2011, Russell Wheeler’s twenty-four year old son, Richard, began to experience blurring of his vision. An examination revealed a swollen op...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.