Welcome - Idiopathic Pulmonary Fibrosis (IPF) Community

What is Idiopathic Pulmonary Fibrosis (IPF) ?

Idiopathic pulmonary fibrosis (IPF) is a non-neoplastic pulmonary disease that is characterized by the formation of scar tissue within the lungs in the absence of any known provocation.

Source Orphanet

Idiopathic Pulmonary Fibrosis (IPF) Resources

More members stories

Latest Member Stories

Linda's Journey

by LindasJourney published 9 days ago
2 comments

I was originally given 6 months when i was told of my Pulmonary Fibrosis. To get all my affairs in order. That was May 27, 2014 and today is July 1...

Idiopathic pulmonary fibrosis (IPF)

by hope1 published 28 days ago
21 comments

January 2012 I become very ill. My lungs felt like they were on fire. I had two rounds of prednisone (low dosage) with not much improvement. Wit...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.