Welcome - Idiopathic Pulmonary Fibrosis (IPF) Community

What is Idiopathic Pulmonary Fibrosis (IPF) ?

Idiopathic pulmonary fibrosis (IPF) is a non-neoplastic pulmonary disease that is characterized by the formation of scar tissue within the lungs in the absence of any known provocation.

Source Orphanet

Idiopathic Pulmonary Fibrosis (IPF) Resources

More members stories

Latest Member Stories

21 yr old with Pulmonary hypertension, Heart failure and Pulmonary fibrosis

by stratacella published 29 days ago

My wife and I have been on a journey for some length of time and did not know it until just last week. My wife was diagnosed with Pulmonary Arteria...

Living One Day At A Time

by w-travis published 3 months ago

« After losing his brother and uncle to IPF, my husband was coaxed to go in for check up. He was diagnosed about a year ago with ILD, IPF. At that ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.