Welcome - Idiopathic Pulmonary Fibrosis (IPF) Community

What is Idiopathic Pulmonary Fibrosis (IPF) ?

Idiopathic pulmonary fibrosis (IPF) is a non-neoplastic pulmonary disease that is characterized by the formation of scar tissue within the lungs in the absence of any known provocation.

Source Orphanet

Idiopathic Pulmonary Fibrosis (IPF) Resources

More members stories

Latest Member Stories


by dlbarnes published 3 days ago
No comment

April 17, 2015, I received the gift of life through the generosity of a donor and Duke University Medical. I received a new lung (single LH). I am ...

Linda's Journey

by LindasJourney published 13 days ago
One comment

I was originally given 6 months when i was told of my Pulmonary Fibrosis. To get all my affairs in order. That was May 27, 2014 and today is July 1...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.