Hereditary Spastic Paraplegia (HSP) Community

Meet, discuss & support other patients or families living with Hereditary Spastic Paraplegia (HSP). Contribute to topics, or just share what's on your mind

Supportive advice for both employers and employees when dealing with rare diseases

Here are some resources that I pulled for another rare disease patient. They may be helpful to you!

http://www.nytimes.com/2009/06/20/health/2...

http://ihcrp.georgetown.edu/agingsociety/p...

http://askjan.org/links/about.htm

In terms of legal issues, information about GINA may also be of interest, which protects Americans from discrimination based on their genetic information in both health insurance (Title I) and employment (Title II).

http://www.genome.gov/10002077

http://www.ginahelp.org/#

Thanks very much for this, Allie. Great information, I really appreciate it!