Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

My son aged 3years with HSP

by Rachel67pink published 21 days ago
One comment

Where to begging.... Well my son was born 28th May 2013 good pregnancy, good delivery reaching all his mile stones until he was 1. He started crawl...

My baby sister

by Megan2483 published 23 days ago
2 comments

My sister Caitie is three years younger than me. She has always struggled with some significant learning disabilities that have affected her social...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.