Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories


by PETE published 2 months ago

Hi I'm Pete I've known about my HSP for a while. I've spent years trying to ignore it. Walking isn't easy now, as the years go by, I notice a chang...

My Daughter's Story

by batson_jessica published 3 months ago

My daughter Brista was always a toe walker from the age of 9 months when she started walking. She walked, ran and did gymnastics on her toes. When ...