Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

Our World Changed.

by Roxy08 published 23 days ago

Bryan is a charming, good looking, happy go lucky kind of guy. He smiles and the world lights up. Bryan has always laughed and found humour in life...

Me and my wonky genes

by Bay1973 published about 1 month ago


I'm Steve a 42yr old chap from Portsmouth in the UK. I was diagnosed with mild HSP7 in 2014 -symptoms started in 2001. I remember visiting m...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.