Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

Abled In Disabled

by disabled_equestrian15 published 2 days ago
One comment

My Sister in law was also born with (HSP) at a young age she was confined to a wheelchair. over the years she has progressed to a frame and now she...

My history with HSP

by noah published 4 days ago
No comment

I have suffered from this awful disease for years and also watched my family suffer from this. My family has 6 people that has dealt with this and ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.