Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

Long road to discovery

by stevebertasso published 19 days ago
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My condition began to develop at the age of 34. I began to have difficulty running, stiffness and minor gait changes over the winter months. Duri...

My Daughter's Story

by batson_jessica published 27 days ago

My daughter Brista was always a toe walker from the age of 9 months when she started walking. She walked, ran and did gymnastics on her toes. When ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.