Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

SPG7 in children

by polla published about 1 month ago
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Hello my name is Claudia and I am from Chile My son Lucas, who is currently 2 years and 5 months old, was born with a series of problems (epilepsy,...

Trust me to get a rare condition

by nicolafalloon published about 1 month ago

I don't know particularly where to start. Though I do know having HSP has changed my life.

HSP started for me in my 20s and gradually got worse....

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.