Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

Baclofen pump/ hip surgery

by MarioBoy03 published 27 days ago No comment

well , my DS, age 9, was diagnosed at birth with Familial Spastic Paraparesis, he started to crawl/scoot at 11 months old. Jesse has never been ab...

Rare Disease Day 2015

by RareConnect team published 3 months ago No comment

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...