Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

Navigating with HSP

by tabhood published 12 days ago

I was diagnosed with HSP, specifically SPG5A, in June 2016. Mine is a firm diagnosis after genetic testing proving two faulty copies of the same ge...

Long road to discovery

by stevebertasso published about 1 month ago
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My condition began to develop at the age of 34. I began to have difficulty running, stiffness and minor gait changes over the winter months. Duri...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.