Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

Me and my wonky genes

by Bay1973 published 29 days ago


I'm Steve a 42yr old chap from Portsmouth in the UK. I was diagnosed with mild HSP7 in 2014 -symptoms started in 2001. I remember visiting m...

How I found out

by bwgreen published 4 months ago

She'd never had someone get worse until me - with the effort I was putting in, she figured that there must be something else going on, so she got m...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.