Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

What is wrong with me?

by ElinFiona published 1 day ago
One comment

Have you ever felt a vacuum moving through your arms and legs, like your inner skin are ripped off? This happened to me January 2016. It was extrem...

A Short Summary of My Complex Story

by murraymeetze published about 1 month ago
4 comments

I live in Colorado but am originally from South Carolina. I have Ehlers-Danlos Syndrome (EDS, currently diagnosed Hypermobility, Type 3), Autosomal...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.