Welcome - Hereditary Spastic Paraplegia (HSP) Community

What is Hereditary Spastic Paraplegia (HSP) ?

Hereditary Spastic Paraplegia is a group of rare, inherited neurological disorders. Their primary symptoms are progressive spasticity and weakness of the leg and hip muscles. The condition is characterized by insidiously progressive lower extremity weakness and spasticity.

Source: Participating patient organizations visible below

Hereditary Spastic Paraplegia (HSP) Resources

More members stories

Latest Member Stories

It may push me down but I get up and shove it back!

by davidfinch published 25 days ago
One comment

Hereditary Spastic Paraplegia (HSP) it has affected me from about the time I was 3 years old. During my school years my schoolmates could see that ...

Navigating with HSP

by tabhood published about 1 month ago
7 comments

I was diagnosed with HSP, specifically SPG5A, in June 2016. Mine is a firm diagnosis after genetic testing proving two faulty copies of the same ge...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.