Welcome - Hereditary Sensory and Autonomic Neuropathies (HSAN) Community

What is Hereditary Sensory and Autonomic Neuropathies (HSAN) ?

The hereditary sensory and autonomic neuropathies (HSAN) encompass a number of inherited disorders that are associated with sensory dysfunction (depressed reflexes, altered pain and temperature perception) and varying degrees of autonomic dysfunction (gastroesophageal reflux, postural hypotention, excessive sweating).

Hereditary Sensory and Autonomic Neuropathies (HSAN) Resources

More members stories

Latest Member Stories

Call for HSAN stories

by martacampabadal published about 1 month ago
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There are still many people living in all regions of the world that have yet to be properly diagnosed with any form of HSAN. We are reaching out to...

Earl's Story

by Rachelle published about 1 month ago
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I met my wife, Sandy in 1964 she was 17. She and I married shortly thereafter. At that time there was no knowledge of the disease, or signs of the ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.