Welcome - Hemiconvulsion-hemiplegia-epilepsy syndrome (HHE) Community
What is Hemiconvulsion-hemiplegia-epilepsy syndrome (HHE) ?
Hemiconvulsion-hemiplegia-epilepsy syndrome is a neurological disorder, which presents itself as a febrile illness at the onset. Fevers and convulsions are only reduced/stopped via medications. The patient is left with a resulting hemiplegia from the affected hemisphere. MRI and EEG tests show a resulting acute atrophy of one hemisphere of the brain - of which will depend on the severity of the hemiplegia.Hemiconvulsion-hemiplegia-epilepsy syndrome (HHE) Resources
Latest Member Stories
He was firstly misdiagnosed as having a stroke, as he presented with paralysis on the right side of his body. He regained some of his strength and...
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RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.