Welcome - Hemiconvulsion-hemiplegia-epilepsy syndrome (HHE) Community

What is Hemiconvulsion-hemiplegia-epilepsy syndrome (HHE) ?

Hemiconvulsion-hemiplegia-epilepsy syndrome is a neurological disorder, which presents itself as a febrile illness at the onset. Fevers and convulsions are only reduced/stopped via medications. The patient is left with a resulting hemiplegia from the affected hemisphere. MRI and EEG tests show a resulting acute atrophy of one hemisphere of the brain - of which will depend on the severity of the hemiplegia. 

Hemiconvulsion-hemiplegia-epilepsy syndrome (HHE) Resources

More members stories

Latest Member Stories

Oliver's HHE Diagnosis

by matojack published 3 months ago
4 comments

Our special boy, Oliver, has suffered from febrile seizures for a couple of years now. In early February, however, he suffered from such an episod...

Living with Hemi-convulsion Hemiplegia Epilepsy Syndrome in Australia

by kellyw44 published 5 months ago
7 comments

He was firstly misdiagnosed as having a stroke, as he presented with paralysis on the right side of his body. He regained some of his strength and...

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