Welcome - Glut1 DS Community

What is Glut1 DS ?

Glucose Transporter Type I Deficiency Syndrome (Glut1 Deficiency, Glut1 DS, G1D, or De Vivo Disease) is a genetic disorder that impairs brain metabolism. Patients with Glut1 Deficiency have insufficient cellular energy to permit normal brain growth and function.

Source: Participating patient organizations visible below

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Latest Member Stories

Glut DS

by cristinafernandeziglesias published 2 months ago 2 comments

Hi, I'm the mom of an 8 year old who just diagnosed GLUT1. We will soon begin with the ketogenic diet, and I would like to speak with you about how...

Nico's Story

by All4Nico published 6 months ago 7 comments

Nico was born October 21, 2004. He was developing normally until at about 9 months when he had his seizure. It was a tonic-clonic seizure which las...