Welcome - Glut1 DS Community

What is Glut1 DS ?

Glucose Transporter Type I Deficiency Syndrome (Glut1 Deficiency, Glut1 DS, G1D, or De Vivo Disease) is a genetic disorder that impairs brain metabolism. Patients with Glut1 Deficiency have insufficient cellular energy to permit normal brain growth and function.

Source: Participating patient organizations visible below

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More members stories

Latest Member Stories

Rare Disease Day 2015

by RareConnect team published about 1 month ago 2 comments

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...

Grace's Story

by RareConnect team published 6 months ago 2 comments

Grace started the ketogenic diet in July 2008. She immediately showed signs of improvement within days of being on the diet, even before leaving th...