Welcome - Fetal AntiConvulsant Syndromes (FACS) Community

What is Fetal AntiConvulsant Syndromes (FACS) ?

The AntiConvulsant Syndromes are caused when AntiEpileptic medications affect the Fetus used during pregnancy.

AntiConvulsant medication is used not only for epilepsy, but migraine, pain, mental health problems and bipolar disorder.

Fetal AntiConvulsant Syndromes or FACS for short, is a complex syndrome with a number of disabilities; ranging from Congenital abnormalities, called malformations, are conditions that are present at birth (congenital). There are numerous variations of congenital malformations of the bone and soft tissue of the head and spine, including neural tube defects such as spina bifida and heart. Cognitive (Cognitive delay usually refers to a developmental delays. That means that an individuals cognitive abilities do not match the expectations of other children of the same age group) problems such as autism, dyslexia etc. communication problems such as language delay and mental health problems and low IQ. If one child has FACS within a family unit, then there will be a 55% likelihood that other siblings will be too.

Source: Patient groups listed below

Fetal AntiConvulsant Syndromes (FACS) Resources

More members stories

Latest Member Stories

EnfantsDepakine-Suisse.ch

by rgineclestinefivazfavez published 29 days ago
3 comments

I started researching for my children and for me to understand why, in 2015, they no longer let women get pregnant while they were on Depakine – g...

FACS Syndrome and my family

by Emma4facs published 6 months ago
One comment

The advice given to me by my Neurologist, was always to take my medication as this would help control my seizures, so trusting the experts always d...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.