Welcome - Evans Syndrome Community

What is Evans Syndrome ?

Evans syndrome is rare autoimmune disorder defined by the combination (either concurrently or sequentially) of an attack on two or more lines of blood, including red blood cells (Autoimmune Hemolytic Anemia), platelets (Ideopathic Thrombocytopenia or ITP), and white blood cells. 

Source: Participating patient organizations visible below

Evans Syndrome Resources

More members stories

Latest Member Stories

Already 27 years with Evans syndrome

by armand6259 published 9 months ago

As I mentioned in my summary, my first crisis was in 1989, avec an AHAI treated with a blood transfusion and corticoids. I didn't have other crises...

Solving a Mystery

by RareConnect team published 10 months ago

Since moving to Philly, Colin developed pneumonia and pink eye. I had chalked this up to burning the candle at both ends. But what Jess was telling...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.