Welcome - Evans Syndrome Community

What is Evans Syndrome ?

Evans syndrome is rare autoimmune disorder defined by the combination (either concurrently or sequentially) of an attack on two or more lines of blood, including red blood cells (Autoimmune Hemolytic Anemia), platelets (Ideopathic Thrombocytopenia or ITP), and white blood cells. 

Source: Participating patient organizations visible below

Evans Syndrome Resources

More members stories

Latest Member Stories

Ben 10's Story

by Dcrussell published 4 months ago

My son Ben was seen by a specialist at the Hem/Onc Clinic, Upstate Hospital, Syracuse NY. He was 22 mos old and had platelet count at 5,000. He w...

14 years of struggle

by vivianaperez published 6 months ago
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Hello I am Viviana I'm 34, it's been 14 years struggling against thrombocytopenic purpura and last year I was diagnosed hemolytic anemia after givi...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.