Welcome - Evans Syndrome Community

What is Evans Syndrome ?

Evans syndrome is rare autoimmune disorder defined by the combination (either concurrently or sequentially) of an attack on two or more lines of blood, including red blood cells (Autoimmune Hemolytic Anemia), platelets (Ideopathic Thrombocytopenia or ITP), and white blood cells. 

Source: Participating patient organizations visible below

Evans Syndrome Resources

More members stories

Latest Member Stories

Already 27 years with Evans syndrome

by armand6259 published 2 months ago
One comment

As I mentioned in my summary, my first crisis was in 1989, avec an AHAI treated with a blood transfusion and corticoids. I didn't have other crises...

Ben 10's Story

by Dcrussell published 7 months ago

My son Ben was seen by a specialist at the Hem/Onc Clinic, Upstate Hospital, Syracuse NY. He was 22 mos old and had platelet count at 5,000. He w...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.