Welcome - Evans Syndrome Community

What is Evans Syndrome ?

Evans syndrome is rare autoimmune disorder defined by the combination (either concurrently or sequentially) of an attack on two or more lines of blood, including red blood cells (Autoimmune Hemolytic Anemia), platelets (Ideopathic Thrombocytopenia or ITP), and white blood cells. 

Source: Participating patient organizations visible below

Evans Syndrome Resources

More members stories

Latest Member Stories

14 years of struggle

by vivianaperez published about 1 month ago
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Hello I am Viviana I'm 34, it's been 14 years struggling against thrombocytopenic purpura and last year I was diagnosed hemolytic anemia after givi...

One year ago today

by Triciacurtis published 2 months ago
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The first thing we did to reduce complications was refusing a blood transfusion. There are many inherent risks with putting someone else's blood i...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.