Welcome - Evans Syndrome Community

What is Evans Syndrome ?

Evans syndrome is rare autoimmune disorder defined by the combination (either concurrently or sequentially) of an attack on two or more lines of blood, including red blood cells (Autoimmune Hemolytic Anemia), platelets (Ideopathic Thrombocytopenia or ITP), and white blood cells. 

Source: Participating patient organizations visible below

Evans Syndrome Resources

More members stories

Latest Member Stories

My teenage daughter - Florida, USA

by Triciacurtis published 8 months ago 14 comments

A day later, she woke up and was pale and faint. After resting, she felt a little better. Two days passed and she wasn't improving and she began t...

Jeff's story

by lkilty published 11 months ago 4 comments

Jeff was diagnosed with Evan's Syndrome in May 2014 following a trip to the doctor's to evaluate a hard area in his thigh. The following day he wo...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.