All Erdheim-Chester Disease Patient Groups

Here's a selection of information from patients & professionals to better understand Erdheim-Chester Disease.

  • Erdheim-Chester Disease (ECD) Global Alliance

    The ECD Global Alliance is a 501 (c)(3) non-profit public charity dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission the organization works with the global community to:
    (1) Raise awareness of ECD.
    (2) Provide support to those affected by the disease.
    (3) Advocate for and support research programs.
    (4) Share educational material and facilitate information sharing among interested parties regarding ECD.

    Contact Erdheim-Chester Disease (ECD) Global Alliance