Erdheim-Chester Disease (ECD) Community
Here's a selection of information from patients & professionals to better understand Erdheim-Chester Disease (ECD).
Here are some of the most frequently asked questions and their answers:
If you are a patient or carer with a question about living with ECD, about treatments, or other relevant information please write your question on the FORUM.
Visit the ECD Global Alliance for more FAQs.
It is often difficult to diagnose ECD. Many patients go years before they get a correct diagnosis. When a doctor learns of suggestive symptoms (s)he will often order more tests. X-Rays and/or el...
Erdheim-Chester Disease is an extremely rare disorder that can affect many different organs of the body. It is characterized by excessive production and accumulation of specific cells whose normal...