Erdheim-Chester Disease (ECD) Community

Meet, discuss & support other patients or families living with Erdheim-Chester Disease (ECD). Contribute to topics, or just share what's on your mind


5th Annual International Erdheim-Chester Disease Patient & Family Gathering

October 27, 2017 New York, NY USA
The ECD Patient & Family gathering is the only conference focused on uniting those affected by Erdheim-Chester Disease from around the world to increase their knowledge of ECD, learn how to advocate for themselves in a healthcare system often unaware of their illness, and promote fellowship among patients and caregivers. Visit for more information.

Register at Please email questions to Jessica Corkran at

Go to the Rareconnect announcement here: