Erdheim-Chester Disease (ECD) Community

Meet, discuss & support other patients or families living with Erdheim-Chester Disease (ECD). Contribute to topics, or just share what's on your mind

JCorkran
moderator

5th Annual International Erdheim-Chester Disease Patient & Family Gathering

October 27, 2017 New York, NY USA
The ECD Patient & Family gathering is the only conference focused on uniting those affected by Erdheim-Chester Disease from around the world to increase their knowledge of ECD, learn how to advocate for themselves in a healthcare system often unaware of their illness, and promote fellowship among patients and caregivers. Visit http://erdheim-chester.org/news/ecd-patien... for more information.

Register at http://events.r20.constantcontact.com/regi... Please email questions to Jessica Corkran at Jessica.corkran@erdheim-chester.org.

Go to the Rareconnect announcement here: https://www.rareconnect.org/en/community/e...