Erdheim-Chester Disease (ECD) Community

Meet, discuss & support other patients or families living with Erdheim-Chester Disease (ECD). Contribute to topics, or just share what's on your mind


2017 Annual International ECD Patient & Family Gathering

Save the date October 27, 2017 for the 5th ECD Patient and Family Gathering. Join others fighting ECD to meet the experts, learn more about ECD, and hear about current research studies nationwide.

Registration and details will be available soon.