Welcome - Erdheim-Chester Disease (ECD) Community
What is Erdheim-Chester Disease (ECD) ?
Erdheim-Chester Disease is an ultra rare non-Langerhans' cell histiocytosis that can affect many different organs of the body. ECD is not currently classified, i.e., it is not yet known whether ECD is a cancer, autoimmune disorder, storage disorder, infectious disease, etc.
Source: ECD Global Alliance
Latest Member Stories
My mother who is now 76 years old lives in a french island in the Caribbean, The Martinique, and I, live in the sister island, The Guadeloupe. Four...
Partners and Patient Groups
RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.