Welcome - Epidermolysis Bullosa (EB) Community

What is Epidermolysis Bullosa (EB) ?

Epidermolysis Bullosa is a group of rare, inherited disorders that affects skin and mucous membranes. The clinical picture ranges from mild to severe. Below, you'll find testimonies from patients who live with this genetic disease.

Source: Participating patient organizations visible below

Epidermolysis Bullosa (EB) Resources

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Latest Member Stories

Newborn Family Member with EB

by kelsiebrake published 6 months ago
One comment

My cousin's baby was just born with EB and they are having a lot of extra costs trying to stay up at the hospital and getting the baby the required...

The truth about my sickness

by cristian-123 published 10 months ago
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These short nine years in my life have not been easy for me and my family because I suffer very painful injuries in my skin, which are not easy to ...