Welcome - Epidermolysis Bullosa (EB) Community

What is Epidermolysis Bullosa (EB) ?

Epidermolysis Bullosa is a group of rare, inherited disorders that affects skin and mucous membranes. The clinical picture ranges from mild to severe. Below, you'll find testimonies from patients who live with this genetic disease.

Source: Participating patient organizations visible below

Epidermolysis Bullosa (EB) Resources

More members stories

Latest Member Stories

Help and support to children with EB

by gimnasioem published about 1 month ago 2 comments

A month ago I started helping 2 children with EB, they are Juli and Luli. I wish and I need to know everything I can about this disease because the...

Epidermolysis Bullosa and Preimplantation Diagnosis

by naiaragc published 3 months ago 4 comments

My names is Naiara and at present we are talking with my partner about having children. We got married in 2013 and really feel like having our smal...

Partners and Patient Groups