Welcome - Epidermolysis Bullosa (EB) Community
What is Epidermolysis Bullosa (EB) ?
Epidermolysis Bullosa is a group of rare, inherited disorders that affects skin and mucous membranes. The clinical picture ranges from mild to severe. Below, you'll find testimonies from patients who live with this genetic disease.
Source: Participating patient organizations visible belowEpidermolysis Bullosa (EB) Resources
Latest Member Stories
Partners and Patient Groups
RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.