Welcome - Epidermolysis Bullosa (EB) Community

What is Epidermolysis Bullosa (EB) ?

Epidermolysis Bullosa is a group of rare, inherited disorders that affects skin and mucous membranes. The clinical picture ranges from mild to severe. Below, you'll find testimonies from patients who live with this genetic disease.

Source: Participating patient organizations visible below

Epidermolysis Bullosa (EB) Resources

More members stories

Latest Member Stories

The truth about my sickness

by cristian-123 published 4 months ago No comment

These short nine years in my life have not been easy for me and my family because I suffer very painful injuries in my skin, which are not easy to ...

Living with EB

by Mdonnelly published 7 months ago One comment

I was born in 1946. Three days after birth I was taken to the University of Iowa Hospitals and Clinics in Iowa City, Iowa . I was there for three...