Welcome - Epidermolysis Bullosa (EB) Community
What is Epidermolysis Bullosa (EB) ?
Epidermolysis Bullosa is a group of rare, inherited disorders that affects skin and mucous membranes. The clinical picture ranges from mild to severe. Below, you'll find testimonies from patients who live with this genetic disease.
Source: Participating patient organizations visible belowEpidermolysis Bullosa (EB) Resources
Latest Member Stories
My names is Naiara and at present we are talking with my partner about having children. We got married in 2013 and really feel like having our smal...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.