The Ehlers-Danlos Society

Here's a selection of information from patients & professionals to better understand Ehlers-Danlos Syndrome.


Our Vision

We are striving toward a time when all those with Ehlers-Danlos syndrome achieve their right for an early diagnosis, good management, respect and recognition for their condition — time when geography does not determine your quality of life and when you tell someone you have Ehlers-Danlos syndrome, you are not asked what that is.