Welcome - Ehlers-Danlos Syndrome (EDS) Community

What is Ehlers-Danlos Syndrome (EDS) ?

Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hypermobility, skin hyper extensibility and abnormal wound healing.

Source: Participating patient organizations visible below

Ehlers-Danlos Syndrome (EDS) Resources

More members stories

Latest Member Stories

Rare Disease Day 2015

by RareConnect team published about 1 month ago No comment

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...

Bumpy Road

by gotbekah published 5 months ago 4 comments

I love this quote because I can relate 100%. I'm sure majority of people with EDS can relate as well. Life does not pause because we are in pain....