Welcome - Ehlers-Danlos Syndrome (EDS) Community

What is Ehlers-Danlos Syndrome (EDS) ?

Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hypermobility, skin hyper extensibility and abnormal wound healing.

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Ehlers-Danlos Syndrome (EDS) Resources

More members stories

Latest Member Stories

difficult diagnosis

by annavu published 11 days ago One comment

I have a 6 year old boy named Alessandro who was operated over a year ago of "congenital clubfoot", but actually his feet haven’t been adjusted a...

Annabelle's Challenge with Vascular Ehlers-Danlos Syndrome

by griffinj published about 1 month ago 2 comments

At just 3 yrs old our daughter Annabelle Jane Griffin 'AJ' was diagnosed with a very rare medical condition Vascular Ehlers-Danlos Syndrome, it is ...