Welcome - Ehlers-Danlos Syndrome (EDS) Community

What is Ehlers-Danlos Syndrome (EDS) ?

Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hypermobility, skin hyper extensibility and abnormal wound healing.

Source: Participating patient organizations visible below

Ehlers-Danlos Syndrome (EDS) Resources

More members stories

Latest Member Stories

My Life with EDS

by praylittlejay published 1 day ago No comment

I've been active my whole life; four years playing varsity softball and volleyball. I have had chronic pain and dislocations since I was 11, but I ...

Reinventing Yourself

by involuntary_troglodyte published about 1 month ago No comment

I felt like I was on the fast track. 100 songs polished and ready at 18, being offered free recording and playing venues, I felt I may actually b...