Welcome - Ehlers-Danlos Syndrome (EDS) Community

What is Ehlers-Danlos Syndrome (EDS) ?

Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hypermobility, skin hyper extensibility and abnormal wound healing.

Source: Participating patient organizations visible below

Ehlers-Danlos Syndrome (EDS) Resources

More members stories

Latest Member Stories

My Wife Had EDS and Did Not Know it!

by edsawareness published about 16 hours ago

We were married for 41 years. You’d think that after all of that time you would know everything there was to know about a person.

- I ...

In denial...

by Ranileah published about 16 hours ago

I was 11 years old before EDS started to really affect my life. It was the first time my weak joints really gave out. It was my left knee. I will s...