Welcome - Ehlers-Danlos Syndrome (EDS) Community

What is Ehlers-Danlos Syndrome (EDS) ?

Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hypermobility, skin hyper extensibility and abnormal wound healing.

Source: Participating patient organizations visible below

Ehlers-Danlos Syndrome (EDS) Resources

More members stories

Latest Member Stories

Living with "EDS" Ehlers-Dalos Syndrome

by kyramichelleparker published 4 months ago

Growing up I was very flexible, along with what we thought was "double jointed", and honestly sometimes I did hurt, mostly my joints but during my ...

A very brief history of me

by rajaenchen published 5 months ago

« Hi. My name is Ruth. My husband and I own a small carpet cleaning company in northern nevada. I was diagnosed with many chronic conditions not th...