Welcome - Ehlers-Danlos Syndrome (EDS) Community

What is Ehlers-Danlos Syndrome (EDS) ?

Ehlers-Danlos syndrome (EDS) is a genetic connective tissue disorder characterized by joint hypermobility, skin hyper extensibility and abnormal wound healing.

Source: Participating patient organizations visible below

Ehlers-Danlos Syndrome (EDS) Resources

More members stories

Latest Member Stories

Share Celiprorol medication experience for Vascular Type EDS

by Abcde published about 6 hours ago No comment

My husband was diagnosed as vascular EDS (type IV) in October 2014. He experienced arterial dissections at his heart, spleen, and kidney during 3 y...

Reinventing Yourself

by involuntary_troglodyte published 18 days ago No comment

I felt like I was on the fast track. 100 songs polished and ready at 18, being offered free recording and playing venues, I felt I may actually b...