Welcome - DysNet Community

What is DysNet ?

DysNet is a global network aimed at connecting anyone who is affected, personally or professionally, with limb differences (dysmelia).

Source: Participating patient organizations visible below

DysNet Resources

More members stories

Latest Member Stories

Charlotte's Story

by RareConnect team published 3 months ago 4 comments

I was born in 1963 with a missing left hand and a shortened forearm. My early years were filled with visits to the limb fitting centre at Roehampto...

Monika's Story

by RareConnect team published 3 months ago No comment

The fact that the hip was missing a bone was noticed by a vigilant midwife and she knew what to do. This lady was an paediatric expert and my pare...