Welcome - Congenital limb differences Community
What is Congenital limb differences ?
Dysmelia is the generic term for all types of congenital limb differences - genetic, environmentally-induced or caused by an isolated fetal development problem. It is a rare condition with varying degrees and types of congenital limb damage and affects about 5 people in every 10,000.
Source: Participating patient organizations visible belowCongenital limb differences Resources
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Partners and Patient Groups
RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.
- Föreningen för de Neurosedynskadade
- Thalidomide Trust UK
- Reach UK
- Thalidomide Society UK
- Irish Thalidomide Survivors
- Assoc. Thalidomidici Italiani
- NESOS Netherlands
- Associazione Italiana Sindrome di Poland
- Contergan Austria
- Contergan NRW
- TAR Syndrome Group
- PiP UK
- Contergan Hessen