Welcome - DysNet Community

What is DysNet ?

DysNet is a global network aimed at connecting anyone who is affected, personally or professionally, with limb differences (dysmelia).

Source: Participating patient organizations visible below

DysNet Resources

More members stories

Latest Member Stories

Rare Disease Day 2015

by RareConnect team published about 1 month ago No comment

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...

Charlotte's Story

by RareConnect team published about 1 year ago 4 comments

I was born in 1963 with a missing left hand and a shortened forearm. My early years were filled with visits to the limb fitting centre at Roehampto...