Welcome - Dravet Syndrome Community
What is Dravet Syndrome ?
Dravet Syndrome is one of the most catastrophic epilepsies and is a rare neurological condition causing severe, difficult to control seizures alongside developmental delay.
Source: Participating patient organizations visible belowDravet Syndrome Resources
Latest Member Stories
Partners and Patient Groups
RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.