Welcome - Dravet Syndrome Community

What is Dravet Syndrome ?

Dravet Syndrome is one of the most catastrophic epilepsies and is a rare neurological condition causing severe, difficult to control seizures alongside developmental delay. 

Source: Participating patient organizations visible below

Dravet Syndrome Resources

More members stories

Latest Member Stories

Ollie my beautiful Angel.

by sarahjohnson published 2 months ago No comment

This beautiful innocent little Angel Ollie, is the reason I want to continue to raise awareness and money for Dravet Syndrome.
Ollie was the happi...

Our Angel Ally Marie

by 114Ally published about 1 year ago 2 comments

Ally was born seizing, and that's about all I know, she got very sick this spring, she had dangerously low white blood cells, so they changed her s...