Welcome - Dravet Syndrome Community

What is Dravet Syndrome ?

Dravet Syndrome is one of the most catastrophic epilepsies and is a rare neurological condition causing severe, difficult to control seizures alongside developmental delay. 

Source: Participating patient organizations visible below

Dravet Syndrome Resources

More members stories

Latest Member Stories

Our Angel Ally Marie

by 114Ally published 9 months ago One comment

Ally was born seizing, and that's about all I know, she got very sick this spring, she had dangerously low white blood cells, so they changed her s...

Letter to my child

by Gabry published 11 months ago 5 comments

Letter to my child
This is an extract from the book “Lettera al Figlio” (Letter to my child) by Gabriele Segalini.

After spending eight da...