Welcome - Dravet Syndrome Community

What is Dravet Syndrome ?

Dravet Syndrome is one of the most catastrophic epilepsies and is a rare neurological condition causing severe, difficult to control seizures alongside developmental delay. 

Source: Participating patient organizations visible below

Dravet Syndrome Resources

More members stories

Latest Member Stories

Our Angel Ally Marie

by 114Ally published 10 months ago One comment

Ally was born seizing, and that's about all I know, she got very sick this spring, she had dangerously low white blood cells, so they changed her s...

Letter to my child

by Gabry published 11 months ago 5 comments

Letter to my child
This is an extract from the book “Lettera al Figlio” (Letter to my child) by Gabriele Segalini.

After spending eight da...