Welcome - Dravet Syndrome Community

What is Dravet Syndrome ?

Dravet Syndrome is one of the most catastrophic epilepsies and is a rare neurological condition causing severe, difficult to control seizures alongside developmental delay. 

Source: Participating patient organizations visible below

Dravet Syndrome Resources

More members stories

Latest Member Stories


by RareConnect team published over 2 years ago No comment

I had a difficult birth and a long labor, but this also happened with my first daughter, there was nothing strange in that... finally Flavia was bo...

Our Angel Ally Marie

by 114Ally published 10 months ago One comment

Ally was born seizing, and that's about all I know, she got very sick this spring, she had dangerously low white blood cells, so they changed her s...