Welcome - Dravet Syndrome Community

What is Dravet Syndrome ?

Dravet Syndrome is one of the most catastrophic epilepsies and is a rare neurological condition causing severe, difficult to control seizures alongside developmental delay. 

Source: Participating patient organizations visible below

Dravet Syndrome Resources

More members stories

Latest Member Stories

Marta's Story

by RareConnect team published 3 months ago One comment

At Marta's first cry, I felt I was the happiest mom in the world. She is a beautiful, healthy and frisky little girl, they tell me. But then, on th...

my life after my child

by vanila published 4 months ago One comment

Dravet syndrome
Possible treatment and medication.
To hear from other parents who have lived what I am going through.