Welcome - Down Syndrome Community

What is Down Syndrome ?

Down Syndrome is a genetic condition where individuals affected have an extra chromosome, and specifically they have 3 copies of chromosome 21. The most diffuse form of Down Syndrome is also known as trisomy 21.

Down Syndrome Resources

More members stories

Latest Member Stories

Carolyn McDiarmid – mother of Clem, 4

by RareConnect team published 3 months ago
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When I think about the disadvantage I thought my other children would have because of Clem, I almost laugh. What greater gift can this family have?...

Shehani De Silva – mother of Akna, 9 “

by RareConnect team published 3 months ago
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“Akna is in grade 4. She has an integration aide working with her and takes part in almost all school activities. A big step for her last year was ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.

No patient group for this community yet