All Cryoglobulinemia Patient Groups

Here's a selection of information from patients & professionals to better understand Cryoglobulinemia.

  • The Vasculitis Foundation

    The Vasculitis Foundation is a 501(c)(3) non-profit patient advocacy organization and the international organization for patients with vasculitis, their families, friends and the health care professionals who care for them. The Vasculitis Foundation advocates for early diagnosis and leading edge treatment for all patients, no matter where they live.

    In addition, the Vasculitis Foundation partners with researchers around the world to determine the cause and discover the cure for vasculitis.

    The Vasculitis Foundation was established in 1986 to alleviate the isolation that patients and their families experience when these life-threatening diseases affect them. New and improved treatments and a greater understanding of vasculitis have increased the life expectancy for patients and also improved their quality of life. For many patients, vasculitis becomes a chronic illness, requiring constant and careful management by the patient and his/her medical team.

    Contact The Vasculitis Foundation
  • Alliance for Cryoglobulinemia

    Alliance for Cryoglobulinemia is an inclusive network of patients, caregivers, family, medical professionals and other supporters dedicated to improving quality of life for people with cryoglobulinemia. Our goal is create a platform that links to all efforts, campaigns, research, support and other resources related to cryoglobulinemia. We utilize community networking, crowd-funding, peer to peer support, social media and campaign strategies to advocate awareness, patient support, education and research. mvennitti@allianceforcryo.org
    @allianceforcryo

    Contact Alliance for Cryoglobulinemia
  • Vasculitis Stichting

    The Vasculitis Stichting (Dutch for Vasculitis Foundation) aims to support Dutch speaking vasculitis patiënts, their families and friends as well as the healthcare professionals taking care of them. Our goals, objectives and activities are similar to those of the Vasculitis Foundation but on a national level and in our own language. The foundation was founded in 1989 as the Friedrich Wegener Stichting and changed her name in 2013. There are approximately 3,500 patients in The Netherlands and 1,150 of them are a member of our foundation

    De Vasculitis Stichting is een organisatie van en voor Nederlands sprekende vasculitispatiënten en hun achterban. Ook (para)medische professionals kunnen bij ons terecht voor informatie en eventuele ondersteuning. De organisatie is opgericht in1989 als de Friedrich Wegener Stichting en heeft in 2013 haar naam veranderd in Vasculitis Stichting. Er zijn in Nederland circa 3,500 vasculitispatiënten waarvan er 1.150 zijn aangesloten bij onze organisatie.

    Contact Vasculitis Stichting