Welcome - Cryoglobulinemia Community

What is Cryoglobulinemia ?

Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs. 

Source: Participating patient organizations visible below

Cryoglobulinemia Resources

More members stories

Latest Member Stories

Rare Disease Day 2015

by RareConnect team published about 1 month ago No comment

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...

We're allowed to talk about it

by sandrineburn published 3 months ago 7 comments

I'm sick. I hurt. I wake up every morning, and my first thought is to assess how bad my migraine is today. Is the piercing pain so bad that I have ...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.