Welcome - Cryoglobulinemia Community
What is Cryoglobulinemia ?
Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs.
Source: Participating patient organizations visible below
More members stories
Latest Member Stories
published 20 days ago
I have Rheumatoid Cryoglobinanemia Vasculitis. I was diagnosed in January, 2012 after several years of the purpura rash. In January, I developed pn...
published 5 months ago
The short version: after diagnosis which took almost a year and 2 different trials of different immune suppressing medications my MD tried Rituxima...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.