Welcome - Cryoglobulinemia Community

What is Cryoglobulinemia ?

Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs. 

Source: Participating patient organizations visible below

Cryoglobulinemia Resources

More members stories

Latest Member Stories

I Care Because I'm Rare

by marianne published about 1 month ago
11 comments

The illness onset was rapid and totally debilitating. I had to dissolve my business and I was forced to stop working. This was the beginning of t...

Vera's Story

by verastafford published about 1 month ago
2 comments

I have Rheumatoid Cryoglobinanemia Vasculitis. I was diagnosed in January, 2012 after several years of the purpura rash. In January, I developed pn...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.