Welcome - Cryoglobulinemia Community

What is Cryoglobulinemia ?

Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs. 

Source: Participating patient organizations visible below

Cryoglobulinemia Resources

More members stories

Latest Member Stories


by bobnewman published about 1 month ago 2 comments

Ten years ago I was a healthy, outdoors person. After getting very cold one chilly November evening I passed out for several minutes. Then the Purp...

Looking for A Diagnosis

by Bashley published 8 months ago 9 comments

I am new here, but I have been struggling with a host of issues since November. It started out that I got these red nodules on my fingers. I was lo...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.