Welcome - Cryoglobulinemia Community

What is Cryoglobulinemia ?

Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs. 

Source: Participating patient organizations visible below

Cryoglobulinemia Resources

More members stories

Latest Member Stories

Cryoglobulinaemia and I

by Eloo published 26 days ago 8 comments

I've been having health problems for the past ten years (my problems started at age 19), recurrent bilateral kidney stones, hepatic and renal colic...

A long journey to diagnosis

by chrisleen53 published 7 months ago 2 comments

I remember making the comment to my aunt one time that cold "hurts". She agreed, but I don't think she really understood how much it really hurts ...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.