Welcome - Cryoglobulinemia Community

What is Cryoglobulinemia ?

Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs. 

Source: Participating patient organizations visible below

Cryoglobulinemia Resources

More members stories

Latest Member Stories

Getting ill in Germany

by roslim published 2 months ago
5 comments

I went to the ER, I had a very strong pain in my foot, they gave me an injection and I went home, they prescribed painkillers and I went back to wo...

I Care Because I'm Rare

by marianne published 6 months ago
25 comments

The illness onset was rapid and totally debilitating. I had to dissolve my business and I was forced to stop working. This was the beginning of t...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.