Welcome - Cryoglobulinemia Community

What is Cryoglobulinemia ?

Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs. 

Source: Participating patient organizations visible below

Cryoglobulinemia Resources

More members stories

Latest Member Stories

New in the group

by Marianne1971 published 3 months ago

Hi everyone,

First of all, I am delighted to have registered on this forum and that it exists. It is so relieving to find myself in the testimon...

New cryoglobulinemia patient

by ameans237 published 8 months ago

I was diagnosed with ITP and suggested to see a hematologist. After testing, I was told I have cryoglobulinemia and I should start infusion therapy...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.