Welcome - Cryoglobulinemia Community

What is Cryoglobulinemia ?

Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs. 

Source: Participating patient organizations visible below

Cryoglobulinemia Resources

More members stories

Latest Member Stories

Comfort

by Willkat published 21 days ago One comment

The short version: after diagnosis which took almost a year and 2 different trials of different immune suppressing medications my MD tried Rituxima...

Cryoglobulinemia

by bobnewman published 2 months ago 2 comments

Ten years ago I was a healthy, outdoors person. After getting very cold one chilly November evening I passed out for several minutes. Then the Purp...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.