Welcome - Cryoglobulinemia Community
What is Cryoglobulinemia ?
Cryoglobulinemia is a disease defined by the presence of cryoglobulins; which are proteins (also called immunoglobulins or antibodies) that become thick in cold temperatures. This process can restrict blood flow causing damage (vasculitis) to: skin, joints, muscles, nerves and/or organs.
Source: Participating patient organizations visible below
published about 1 month ago
The short version: after diagnosis which took almost a year and 2 different trials of different immune suppressing medications my MD tried Rituxima...
published 3 months ago
Ten years ago I was a healthy, outdoors person. After getting very cold one chilly November evening I passed out for several minutes. Then the Purp...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.