Welcome - Cobb syndrome Community

What is Cobb syndrome ?

Cobb syndrome, also known as cutaneomeningospinal angiomatosis, is a rare congenital disorder characterized by visible skin lesions with underlying spinal angiomas or arteriovenous malformations.

Source: Orphanet

Cobb syndrome Resources

More members stories

Latest Member Stories


by monkeymoo published 6 months ago
One comment

I was airlifted to the Mayo Clinic where I underwent a 12-hour laminectomy to remove the dorsal (back) part of my tumor. It was there I was diagnos...


by felix_godoy published 10 months ago
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Catalina was diagnosed with Cobb metameric angiomatous disease with variant lymphangiomatosis of nevus.

In August of 2012, Catalina began to suf...

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RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.