Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories


by aholl770 published about 23 hours ago No comment

My husband was diagnosed with Coats Disease in 2008. He was 33 years old. He went to work (as a welder) one night and I got a phone call about 3 AM...

My son was diagnosed with Coats disease.

by JoseBarrera published about 1 month ago 5 comments

February 22 was a normal Saturday and it felt like a routine going to the ophthalmologist for a check up for my two sons. My youngest son had never...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.