Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Nathan's story

by RareConnect team published about 1 month ago

The yearly eye sight and hearing screening at school is who tipped my parents off that something was aloof with my vision. Personally I knew my vis...

My experience with my son that suffers from Coats disease for the last eleven years

by teresacamorlinga published 4 months ago
One comment

My son is stable at the moment, but the doctor tells us that at any time there might be something that turns out badly and the illness may be react...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.