Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Mi experiencia con mi hijo que padece enfermedad de coats desde hace once años

by teresacamorlinga published 10 days ago
One comment

Mi hijo se encuentra estable en este momento, pero el médico nos dice que en cualquier momento puede haber algo que resulte mal y la enfermedad se ...

Leber Coats Disease + Lupus

by jeremie published about 1 month ago
One comment

=========== As to Coats Disease ===========

- at 14, after a small shock to the left eye -> onset of Coats Disease: I see something like small b...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.