Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Hunters Journey

by Wparmenter published 3 months ago

Hunters Story, On Thursday March 14, 2013 our life went from normal to hectic in a few hours. My mom who watches my youngest son Hunter (6months ol...

Jack's story

by clairemcgovern published 9 months ago

In 2006, we discovered that our son Jack had developed a rare retinal disease in his left eye called Coats disease. We have since learned that some...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.