Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Eduardo - 4 year old diagnosed with Coats Disease

by guivarrichio published 17 days ago
No comment

Eduardo was born 27/May/2012 after a 39 week gestation, healthy baby that presented later a milk protein allergy that "passed" after 2 years and in...

Nathan's story

by RareConnect team published 2 months ago

The yearly eye sight and hearing screening at school is who tipped my parents off that something was aloof with my vision. Personally I knew my vis...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.