Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Jack's story

by clairemcgovern published 23 days ago 2 comments

In 2006, we discovered that our son Jack had developed a rare retinal disease in his left eye called Coats disease. We have since learned that some...

Rare Disease Day 2015

by RareConnect team published 2 months ago No comment

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.