Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Jack's story

by clairemcgovern published 6 months ago 2 comments

In 2006, we discovered that our son Jack had developed a rare retinal disease in his left eye called Coats disease. We have since learned that some...

2 year old with Coats disease

by dspears published 11 months ago 3 comments


I am a mother of two boys. My youngest son, who is now two years old was diagnosed with Coats disease around October 2013. Looking at my...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.