Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Son diagnosed w/Coats several years ago

by Teacher published about 8 hours ago No comment

My son was diagnosed with Coats Disease in one eye several years ago. He was quite young at the time, but had lost a lot of vision in his affected...

Jack's story

by clairemcgovern published 5 months ago 2 comments

In 2006, we discovered that our son Jack had developed a rare retinal disease in his left eye called Coats disease. We have since learned that some...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.