Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

My son, my battle

by Nana81 published 19 days ago
2 comments

When Bastien was 7, his left eye was detached and you could only see the white of the eye. A diagnosis was made of idiopathic uveitis starting from...

Coats disease

by MightyD published 4 months ago
3 comments

My name is Derek, At the age of 41 I was diagnosed with coats disease. My disease so far is contained to my right eye only. Since being diagnosed ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.