Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories

Leber Coats Disease + Lupus

by jeremie published about 1 month ago
One comment

=========== As to Coats Disease ===========

- at 14, after a small shock to the left eye -> onset of Coats Disease: I see something like small b...

4 years old and already COATS disease

by AFECE published 2 months ago
2 comments

In October 2014 we took our 4-year-old son to his medical center for a routine check-up. Once there, we were told he had could not see well, and on...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.