Welcome - Coats Disease Community

What is Coats Disease ?

Coats disease, also known as Coats' Retinitis, Coats' Syndrome, Exudative Retinitis, and Retinal Telangiectasis, is an idiopathic disorder characterized by an abnormal development of retinal vessels (telangiectasia) with a progressive deposition of intraretinal or subretinal exudates, potentially leading to exudative retinal detachment. 

Source: Orphanet

Coats Disease Resources

More members stories

Latest Member Stories


by aholl770 published 6 days ago No comment

He was 33 years old. He went to work (as a welder) one night and I got a phone call about 3 AM telling me that he was at the hospital with vision i...

My son was diagnosed with Coats disease.

by JoseBarrera published about 1 month ago 5 comments

February 22 was a normal Saturday and it felt like a routine going to the ophthalmologist for a check up for my two sons. My youngest son had never...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.