Glycokids Germany

Here's a selection of information from patients & professionals to better understand Congenital Disorders of Glycosylation.

Website: http://glycokids.de

An important task of the Federal Association CDG Syndrome Association is concerned families about these metabolic disease and to inform each other to get in touch. Every year this takes place a pan-European family meetings to promote exchanges between families across countries. In addition, the Federal Association request an information brochure for affected families and doctors have released to compact to inform about the current state of knowledge of the different types of CDG syndrome.