Congenital Disorders of Glycosylation (CDG) Community

Meet, discuss & support other patients or families living with Congenital Disorders of Glycosylation (CDG). Contribute to topics, or just share what's on your mind

rita_apcdg
moderator

Why is having May 16 recognized as #WorldCDGDay so important?

Why is having May 16 recognized as #WorldCDGDay so important? Public awareness is key to get pharma and governments' attention and funding; it is key to empower Families; it is key to #CDGResearch! Get involved in this campaign at http://www.apcdg.com/get-involved-world-cd...