Congenital Disorders of Glycosylation (CDG) Community

Meet, discuss & support other patients or families living with Congenital Disorders of Glycosylation (CDG). Contribute to topics, or just share what's on your mind.

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rita_apcdg
moderator

May 16th is #WorldCDGDay - Let's raise CDG awareness

A friend or family member has been diagnosed with CDG… What now? Raising awareness to find therapies! It is the first step for HOPE! Show you CARE, Be Aware! May 16th is #WorldCDGDay- Click HERE http://www.apcdg.com/resources.html &http://cdgcare.com/resources/ for resources and support.

Keep following and sharing the campaign's posts at https://www.facebook.com/worldCDGawareness...

rita_apcdg
moderator

Agenda for the World Conference on CDG 2017 in Belgium

#WorldCDGConference: Any idea about the agenda of the 3rd World Conference on CDG? Click HERE (http://bit.ly/2neJopG ) and see the surprises inside!
Thank you!

rita_apcdg
moderator

May 16th is #WorldCDGDay!

Put your Heart into raising #CDGAwareness. Take a photo with a heart drawn on your hand or cheek and use our awareness frames to really make your Voice heard!
Let the world know you proudly support May 16th as #WorldCDGDay. Go HERE http://www.apcdg.com/frame-your-cdg-awaren... to find our frames

rita_apcdg
moderator

#WorldCDGDay - Join your Voice to raise #CDGAwareness

Lack of public awareness and visibility of CDG contributes to under-diagnosis and difficulties in accessing specialized services and proper rehabilitation and support! That is why the #WorldCDGDay is so Important!
Promote #CDGAwareness in any way you can!
Go HERE http://www.apcdg.com/get-involved-world-cd... to find our suggestions

rita_apcdg
moderator

Join the Go Green! Think CDG! Campaign

#WorldCDGDay Go green! Think CDG! Throughout this year’s CDG Awareness Campaign, use GREEN to show your support for children and adults affected with Congenital Disorders of Glycosylation (CDG)! Wear green, decorate the house with green lights, and put green ribbons and balloons on trees. Turn the town green for our CDG children and adults, learn more HERE http://www.apcdg.com/go-green-think-cdg-co...

rita_apcdg
moderator

World Conference on CDG - 15-16th July in Leuven

#WorldCDGConference: Do you want to learn more about the Natural History of CDG and future perspectives? Prof. Hudson Freeze will talk about this at the 3rd WORLD CONFERENCE CDG Leuven, Belgium (15 and 16 July 2017). See http://apcdg.com/events.html to start your registration!
Help us, spreading the word CDG and Share our conference posts! Thank you!

rita_apcdg
moderator

Join the #WorldCDGDay campaign

Today is the official kick off of the 2017 edition of the #WorldCDGDay Awareness Campaign! Join us in celebrating these Heros! Raising #CDGAwareness is key to find CURES!
Let's unite as a Community and get involved in the celebrations! Plan an event, join our photo gallery, Hope for CDG campaign or Go green! Think CDG!
To learn more and find out how YOU can make a difference, click HERE http://bit.ly/2nZ7xPB
Keep following us on Facebook at https://www.facebook.com/worldCDGawareness...