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What is CDG ?

Congenital Disorders of Glycosylation (CDG), formerly called carbohydrate-deficient glycoprotein syndrome, are a group of very rare inherited metabolic disorders that affect a process called glycosylation.

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Latest Member Stories

Jackson Debrou

by misz_millerxox published about 1 month ago No comment

Jackson was born on september 29, 2014 via c-section and it was evident at birth that his breathing was a major issue. he also had very low muscle ...

"Princess" Lili's Story

by CDGportugal published 4 months ago 3 comments

My mother had a normal pregnancy, although since the first months she could observe some differences in my sister’s development compared to mine....