Welcome - CDG Community
What is CDG ?
Congenital Disorders of Glycosylation (CDG), formerly called carbohydrate-deficient glycoprotein syndrome, are a group of very rare inherited metabolic disorders that affect a process called glycosylation.
Source: Participating patient organizations visible belowCDG Resources
Latest Member Stories
School transitions and IEPs (Individualized Education Plans) were soon added to our already unplanned and over-extended agenda. Oh, yes, and there ...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.