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What is CDG ?

Congenital Disorders of Glycosylation (CDG), formerly called carbohydrate-deficient glycoprotein syndrome, are a group of very rare inherited metabolic disorders that affect a process called glycosylation.

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"Princess" Lili's Story

by CDGportugal published 23 days ago 3 comments

My mother had a normal pregnancy, although since the first months she could observe some differences in my sister’s development compared to mine....

My Little Trooper

by Melinda published about 1 month ago No comment

When I was pregnant with Josh I had an ultrasound done every month because doctors were worried that I couldn't give birth due to a car accident I ...