Welcome - Castleman Disease (CD) Community

What is Castleman Disease (CD) ?

Castleman Disease (CD) is a rare and poorly-understood inflammatory disorder that occurs in people of all ages, causes lymph node enlargement, and can result in multiple-organ dysfunction. CD can occur in a single lymph node (Unicentric CD) or multiple lymph nodes (Multicentric CD).

Source: CDCN

Castleman Disease (CD) Resources

More members stories

Latest Member Stories

15 years with the Unknown

by JoshuaJames published 11 days ago

After feeling off for so long and having a family of not overly concerned doctors and nurses I was taken to hospital to be checked. At first it was...

Thymoma - Castleman disease

by veronicakees published 2 months ago

Hi, my name is Veronica, I live in La Rioja, Spain. I'll tell you my story: A few years ago I was diagnosed with a tumor in the mediastinum that ob...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.