CAPS Community

Here's a selection of information from patients & professionals to better understand CAPS.

Here are some of the most frequently asked questions and their answers:

If you are a patient or carer with a question about living with CAPS, about treatments, or other relevant information please email your question to and we will put it to the specialists who have agreed to answer your questions from time to time.

  • What is Muckle-Wells?

    Muckle-Wells syndrome (MWS) is one of the cryopyrin associated periodic syndromes (CAPS) caused by mutations in the CIAS1/NLRP3 gene. These syndromes are characterized by fever, rash and joint pain...

  • What is NOMID?

    Neonatal-onset multisystem inflammatory disease (NOMID), also known as chronic infantile neurologic cutaneous articular (CINCA) syndrome, is a rare, congenital, systemic, inflammatory condition dis...

  • What is FCAS?

    Familial cold autoinflammatory syndrome (FCAS), also known as familial cold urticaria, is a rare, inherited inflammatory disorder characterized by intermittent episodes of rash, fever, joint pain a...