CAPS Community

Here's a selection of information from patients & professionals to better understand CAPS.

Here are some of the most frequently asked questions and their answers:

If you are a patient or carer with a question about living with CAPS, about treatments, or other relevant information please email your question to webmaster@rareconnect.org and we will put it to the specialists who have agreed to answer your questions from time to time.

  • What is Muckle-Wells?

    Muckle-Wells syndrome (MWS) is one of the cryopyrin associated periodic syndromes (CAPS) caused by mutations in the CIAS1/NLRP3 gene. These syndromes are characterized by fever, rash and joint pain...

  • What is NOMID?

    Neonatal-onset multisystem inflammatory disease (NOMID), also known as chronic infantile neurologic cutaneous articular (CINCA) syndrome, is a rare, congenital, systemic, inflammatory condition dis...

  • What is FCAS?

    Familial cold autoinflammatory syndrome (FCAS), also known as familial cold urticaria, is a rare, inherited inflammatory disorder characterized by intermittent episodes of rash, fever, joint pain a...