Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). 

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

Living with Muckle Wells Syndrome

by Isobel-c published about 1 month ago
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When I was 18 I was diagnosed with Muckle Wells syndrome. This was confirmed by Dr Hawkins when I was in my mid thirties. They have also tested me ...

Silke and the fever

by Ezz_ published 3 months ago

Our daughter was born two and a half years ago. The umbilical cord did not fall after a month, therefore the doctors started to suspect that someth...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.