Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). 

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

The apple doesn't fall far from the tree

by aYid published 24 days ago
One comment

My journey to diagnosis began shortly after the birth of my first child when I began experiencing fevers at weekly intervals. I was 23. I went to...

Living with Muckle Wells Syndrome

by Isobel-c published 6 months ago
One comment

When I was 18 I was diagnosed with Muckle Wells syndrome. This was confirmed by Dr Hawkins when I was in my mid thirties. They have also tested me ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.