Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

FCAS in Germany

by Mum-Steff published 15 days ago No comment

Finally, after many years, my doctor diagnosed me FCAS (Familial Cold Autoinflammatory Syndrome). When I heard, I was astounded, but I also felt re...

I am 32 and live in Toronto, Canada.

by INKS published about 1 year ago 19 comments

Near the end of high school I started noticing that I was reacting to something I ate or something that I was otherwise exposed to. Whatever it wa...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.