Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

Having mucklewells

by Isobel-c published 4 days ago No comment

When I was 18 I was diagnosed with mucklewells. This was confirmed by Dr Hawkins when I was in my mid thirties. They have also tested me for amaloi...


by pamou published 11 days ago No comment

IMAGENE is a non profit association (n° 0507.626.635) created at the end if 2014 by the familly of a little boy named Logan, aged of 6 who is atta...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.