Welcome - CAPS Community
What is CAPS ?
CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.
Source: Participating patient organizations visible below
by RareConnect team
published about 1 month ago
Rare Disease Day takes place on the last day of February each year.
The main objective of Rare Disease Day is to raise awareness amongst the gen...
published 11 months ago
Near the end of high school I started noticing that I was reacting to something I ate or something that I was otherwise exposed to. Whatever it wa...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.