Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

Silke and the fever

by Ezz_ published about 1 month ago 4 comments

Our daughter was born two and a half years ago. The umbilical cord did not fall after a month, therefore the doctors started to suspect that someth...

Doctors solve patient’s decades-old mystery illness and save her life.

by malinda published about 1 month ago No comment

If you've never heard of a condition called Muckle-Wells syndrome (MWS), you're not alone. This auto-inflammatory genetic disorder is so rare even ...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.