Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

Doctors solve patient’s decades-old mystery illness and save her life.

by malinda published 3 days ago No comment

If you've never heard of a condition called Muckle-Wells syndrome (MWS), you're not alone. This auto-inflammatory genetic disorder is so rare even ...

Finally a diagnosis of Muckle Wells Syndrome (MWS)

by Dcairns published about 1 month ago 6 comments

After knowing something wasn't quite right since age 6 months, we finally have a diagnosis of Muckle-Wells Syndrome at 5 years old following geneti...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.