Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

Rare Disease Day 2015

by RareConnect team published about 1 month ago 2 comments

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...

I am 32 and live in Toronto, Canada.

by INKS published 11 months ago 18 comments

Near the end of high school I started noticing that I was reacting to something I ate or something that I was otherwise exposed to. Whatever it wa...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.