Welcome - Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Community

What is Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). 

Source: Participating patient organizations visible below

Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Resources

More members stories

Latest Member Stories

Amanda

by martinaferrero published 5 days ago
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Amanda is 2 years old, when she was 4 days she had an episode difficult to describe, even for doctors. She needed days of therapy and she was trans...

The apple doesn't fall far from the tree

by aYid published 4 months ago
One comment

My journey to diagnosis began shortly after the birth of my first child when I began experiencing fevers at weekly intervals. I was 23. I went to...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.