Welcome - CAPS Community
What is CAPS ?
CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.
Source: Participating patient organizations visible below
published 8 days ago
My name is Alan and I have been invited to expand on my profile comments in case they may be of interest to anyone in a similar p...
published 6 days ago
She's already deaf, she has to wear glasses, since she was born she has had erythema which disappeared with the canakinumab, but she's still suffer...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.