Welcome - Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Community

What is Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). 

Source: Participating patient organizations visible below

Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Resources

More members stories

Latest Member Stories

Living with CAPS: How do you manage?

by anita__ published about 1 month ago
2 comments

Hi, my name is Anita, I am 23 years old and I have CAPS. I decided to join this forum because of the difficultly I am having managing my health alo...

Ekatherina Stephanenko

by massimilianolucchetti published 5 months ago
One comment

Hello,
my name is Massimiliano Lucchetti and I'm writing this e-mail to find a way to treat Ekatherina (Katia) Stephanenko, a Ukrainian 7-year-ol...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.