Welcome - Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Community

What is Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). 

Source: Participating patient organizations visible below

Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Resources

More members stories

Latest Member Stories

Silke and the fever

by Ezz_ published 11 days ago
4 comments

Our daughter was born two and a half years ago. The umbilical cord did not fall after a month, therefore the doctors started to suspect that someth...

The apple doesn't fall far from the tree

by aYid published about 1 month ago
One comment

My journey to diagnosis began shortly after the birth of my first child when I began experiencing fevers at weekly intervals. I was 23. I went to...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.