Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

I am 32 and live in Toronto, Canada.

by INKS published about 1 month ago 4 comments

Near the end of high school I started noticing that I was reacting to something I ate or something that I was otherwise exposed to. Whatever it wa...

Marìa Florencia

by lnorma1949 published about 1 month ago 2 comments

She's already deaf, she has to wear glasses, since she was born she has had erythema which disappeared with the canakinumab, but she's still suffer...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.