Welcome - CAPS Community
What is CAPS ?
CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.
Source: Participating patient organizations visible below
published 4 days ago
When I was 18 I was diagnosed with mucklewells. This was confirmed by Dr Hawkins when I was in my mid thirties. They have also tested me for amaloi...
published 11 days ago
IMAGENE is a non profit association (n° 0507.626.635) created at the end if 2014 by the familly of a little boy named Logan, aged of 6 who is atta...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.