Welcome - CAPS Community
What is CAPS ?
CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.
Source: Participating patient organizations visible belowCAPS Resources
Latest Member Stories
If you've never heard of a condition called Muckle-Wells syndrome (MWS), you're not alone. This auto-inflammatory genetic disorder is so rare even ...
After knowing something wasn't quite right since age 6 months, we finally have a diagnosis of Muckle-Wells Syndrome at 5 years old following geneti...