Welcome - CAPS Community

What is CAPS ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.

Source: Participating patient organizations visible below

CAPS Resources

More members stories

Latest Member Stories

Finally a diagnosis of Muckle Wells Syndrome (MWS)

by Dcairns published about 1 month ago One comment

After knowing something wasn't quite right since age 6 months, we finally have a diagnosis of Muckle-Wells Syndrome at 5 years old following geneti...

The story so far (MWS)

by Sarrok published about 1 month ago 3 comments

To begin with I suffer from most of the symptoms of Muckle-Wells Syndrome, hearing loss (52% loss in both ears), hives, joint pain, eye redness/pro...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.