Welcome - Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Community

What is Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) ?

CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). 

Source: Participating patient organizations visible below

Cryopyrin Associated Periodic Syndromes (CAPS, MWS, NOMID/CINCA) Resources

More members stories

Latest Member Stories

Ekatherina Stephanenko

by massimilianolucchetti published 14 days ago
No comment

Hello,
my name is Massimiliano Lucchetti and I'm writing this e-mail to find a way to treat Ekatherina (Katia) Stephanenko, a Ukrainian 7-year-ol...

Allergic to the cold

by Jennnagibson20 published 28 days ago
2 comments

I had muckle wells syndrome since birth, every time I set foot outside I would be covered in a painful rash from head to toe, it was so hot to touc...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.