Welcome - CAPS Community
What is CAPS ?
CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.
Source: Participating patient organizations visible below
published 3 days ago
She's already deaf, she has to wear glasses, since she was born she has had erythema which disappeared with the canakinumab, but she's still suffer...
published 4 days ago
Basically, I have always been feeling ill with fevers, encephalitis, heart issues, kidney issues and after 33 years I was diagnosed with NOMID/ MWS...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.