Welcome - CAPS Community
What is CAPS ?
CAPS or Cryopyrin Associated Periodic Syndromes are a group of auto-inflammatory rare diseases (MWS, FCAS & NOMID). Below, you'll find testimonies of patients who live with them.
Source: Participating patient organizations visible below
published 24 days ago
Finally, after many years, my doctor diagnosed me FCAS (Familial Cold Autoinflammatory Syndrome). When I heard, I was astounded, but I also felt re...
published about 1 year ago
Near the end of high school I started noticing that I was reacting to something I ate or something that I was otherwise exposed to. Whatever it wa...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.