All Behcet’s Syndrome Patient Groups

Here's a selection of information from patients & professionals to better understand Behcet’s Syndrome.

  • SIMBA Italy

    Associazione Italiana Sindrome e Malattia di Behçet
    L'attività primaria di Simba Onlus è l' informazione e la diffusione della conoscenza inerente la malattia di Behcet, unitamente al sostegno ed alla difesa dei diritti dei pazienti e dei loro familiari attuata sia tramite i propri canali internet sia capillarmente attraverso i propri referenti regionali.

    Simba Onlus collabora a tal fine con tutti i centri di riferimento italiani, battendosi per ottenere una uniformità di trattamento ed una continuità terapeutica su tutto il territorio nazionale,incentivando la creazione di centri di riferimento nelle regioni che ne sono sprovviste e promuovendo la ricerca in campo medico,genetico e farmacologico.

    Simba Onlus lavora in sinergia con l' Istituto Superiore di Sanità presso cui è associazione accreditata, con la Consulta Nazionale delle malattie rare e localmente ,ove esistenti, prendendo parte ai tavoli di lavoro regionali dedicati alle malattie rare.

    Contact SIMBA Italy
  • As. Española de Behçet

    NUESTROS OBJETIVOS

    -Promover la agrupación de todos los pacientes, familiares, profesionales e interesados para poder trabajar de forma coordinada en las posibles soluciones y facilitar el reconocimiento de la enfermedad.

    -Sensibilizar a la opinión pública de los problemas de identificación, diagnóstico y tratamiento de la Enfermedad de Behçet.

    -Facilitar la información sobre la enfermedad a los pacientes, familiares y profesionales con el objetivo de conocer mejor sus causas, sus manifestaciones y sus tratamientos, con especial énfasis en la correcta utilización del tratamiento farmacológico.

    -Potenciar todos los canales de información para los asociados con la finalidad de propiciar apoyo social, familiar, laboral, psicológico, médico y facilitar los canales de actuación en los casos graves.
    -Estimular y promover la investigación de la enfermedad de Behçet tanto a nivel nacional e internacional.

    -Cooperar con todas las identidades nacionales e internacionales que tengan una finalidad similar para conseguir la mejora de la calidad de vida de los enfermos y una futura curación.

    Contact As. Española de Behçet
  • UK Behçet’s Syndrome Society

    The Behçet’s Syndrome Society was formed in 1983 by Judith Buckle (1950-1997). Its main aims are:

    • To provide information and support for people with Behçet’s disease and for those who care for them.

    • To provide financial aid in hardship caused by Behçet’s disease.

    • To foster education, collaboration and networking in the medical and allied professions with an interest in Behçet’s disease.

    • To promote and assist with research into Behçet’s disease.

    • To promote the formation of patient support groups and awareness of this rare disease amongst the appropriate influential institutions, authorities and decision-making bodies, and to provide them with detailed information about Behçet’s disease.

    Contact UK Behçet’s Syndrome Society
  • American Behcet's Disease Assoc.

    The American Behcet's Disease Association's mission is to provide support and information to people with Behcet's Disease and their families and to educate the medical community about Behcet's Disease. Through education, support, research and fundraising, the ABDA is working to find a cure and promote awareness and understanding of Behcet's Disease.

    Contact American Behcet's Disease Assoc.
  • The Vasculitis Foundation

    The Vasculitis Foundation is a 501(c)(3) non-profit patient advocacy organization and the international organization for patients with vasculitis, their families, friends and the health care professionals who care for them. The Vasculitis Foundation advocates for early diagnosis and leading edge treatment for all patients, no matter where they live.

    In addition, the Vasculitis Foundation partners with researchers around the world to determine the cause and discover the cure for vasculitis.

    The Vasculitis Foundation was established in 1986 to alleviate the isolation that patients and their families experience when these life-threatening diseases affect them. New and improved treatments and a greater understanding of vasculitis have increased the life expectancy for patients and also improved their quality of life. For many patients, vasculitis becomes a chronic illness, requiring constant and careful management by the patient and his/her medical team.

    Contact The Vasculitis Foundation
  • China Behcet's Patient Association

    Support for people living with Behcet's Syndrome in China

    Contact China Behcet's Patient Association
  • Maroc Behçet

    Le but de création de cette association est d'informer, aider, donner des informations sur la maladie behcet, et de créer espace de communication et d'échange des informations entre les membres de groupe.

    Contact Maroc Behçet
  • Behçet Argentina

    Persona de contacto: Virginia Rodríguez Alonso: virginiamra@gmail.com

    Contact Behçet Argentina