Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

Join in the Rare Disease Day Tweetchat - 28 Feb

by LindaBurke published 3 days ago
No comment

The aHUS Alliance was honored when asked to host a #whywedoresearch Tweetchat on Rare Disease Day 28 February to focus social media attention on th...

Newly diagnosed with aHUS

by Debs76 published 7 days ago
One comment

I fell sick literally out of the blue on 17 January, 2017. The night before I was absolutely fine. I am a working mum of three young children in th...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.