Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

aHUS Physicians, Info and Support

by LindaBurke published 4 days ago
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As might be expected with any rare disease, many doctors never diagnose or treat a single patient with atypical HUS during their entire medical car...

Founder of aHUS India receives Advocacy Award

by LindaBurke published 16 days ago
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Kamal D. Shah, founder of Atypical HUS India, was honored this week as presenter of a keynote speech for the La Renon TANKER Foundation and his sel...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.