Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

24 Sept 2017 marks aHUS Awareness Day

by LindaBurke published 3 days ago
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The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS Aware...

aHUS Global Advocacy, Rare Disease Day 2017

by LindaBurke published about 1 month ago
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The days leading up to world Rare Disease Day 28 February 2017 were both busy and productive for the aHUS global community. By reaching out to pat...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.