Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

2016 aHUS FACT SHEETS - Read, Print, SHARE

by LindaBurke published 12 days ago
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The 2nd annual aHUS Awareness day on 24 September 2016, with this year’s campaign theme is ‘Rising above aHUS’ and its symbol a red balloon, repres...

Global ART Project - aHUS Awareness Day 2016

by LindaBurke published 24 days ago
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The global aHUS Alliance, an affiliation of aHUS patient organizations from around the world, is encouraging all individuals, groups, and organizat...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.