Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

aHUS Global Advocacy, Rare Disease Day 2017

by LindaBurke published 22 days ago
No comment

The days leading up to world Rare Disease Day 28 February 2017 were both busy and productive for the aHUS global community. By reaching out to pat...

aHUS Childrens' Issues -Parents Want to Know

by LindaBurke published about 1 month ago
No comment

Children living with the rare disease atypical HUS are first and foremost children. Despite sharing common medical challenges with adult aHUS pat...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.