Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

aHUS Diagnosis & Treatment – KDIGO Controversy Conference

by LindaBurke published about 1 month ago
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The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain. KDIGO’s mission is to i...

RAREspark – Let’s Talk Beyond the Rare Disease Arena

by LindaBurke published about 1 month ago
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There are millions of people affected worldwide by the estimated 6000 to 8000 rare diseases, with each disease group experiencing a multitude of ba...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.