Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

TMA & Atypical HUS - 24 Aug 2017 BOSTON Conference

by LindaBurke published 7 days ago
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The aHUS Alliance is pleased to announce that ‘Thrombotic Microangiopathy Symposium: Through the Lens of aHUS’ will be held on in Boston on 24 Augu...

24 Sept 2017 marks aHUS Awareness Day

by LindaBurke published about 1 month ago
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The aHUS Alliance, an international group of atypical HUS patient organizations and global advocates, announces its 3rd annual worldwide aHUS Aware...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.