Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

Getting ill in Germany

by roslim published 22 days ago

I went to the ER, I had a very strong pain in my foot, they gave me an injection and I went home, they prescribed painkillers and I went back to wo...

Newly Diagnosed with AHUS

by SavRudd published about 1 month ago

I'm not exactly sure how to start this story. I guess I'm a little overwhelmed and still processing how I am now living with AHUS. It's all really ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.