Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

The dawn that wasn't

by kamaldshah published 14 days ago
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11th July 1997, Chennai, India

"Counter Number 4, please", the magical words of the Consular Officer at the US consulate! No questions asked. He...

aHUS Alliance Global Video Project for aHUS Awareness Day, September 24, 2016

by jeffschmidt331 published 21 days ago
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Please join the aHUS Alliance in celebrating aHUS Awareness Day on September 24! This year’s theme is “Rising above aHUS”.

You (and especially ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.