Welcome - Atypical Hemolytic Uremic Syndrome (aHUS) Community

What is Atypical Hemolytic Uremic Syndrome (aHUS) ?

Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra rare autoimmune disorder. 

Source: Participating patient organizations visible below

Atypical Hemolytic Uremic Syndrome (aHUS) Resources

More members stories

Latest Member Stories

aHUS Child

by marie published 3 days ago
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My son Yoann, now aged sixteen, had HUS at 6 years old. The doctors classified the HUS as "typical", and he grew up in good health with good test r...

24 Sept 2016 - aHUS Awareness Day

by LindaBurke published about 1 month ago
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24 September 2016 is international aHUS Awareness Day.

This week the aHUS Alliance has announced the theme for the 2016 aHUS Awareness Day ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.