Welcome - Aortic dissection Community

What is Aortic dissection ?

Aortic Dissection is a life threatening rare disease where the inner layer of the aorta (intima) has ruptured and the blood is now also flowing between the inner and outer layer of the aorta (like a double-barrel) and threatens to also make the outer layer rupture.

Source: Patient groups listed below.

Aortic dissection Resources

More members stories

Latest Member Stories

My Journey

by dannysgirl0611 published 4 months ago
3 comments

On 10/12/2015 I was doing laundry from our beach vacation when I felt a stabbing pain in my back. I thought I had pulled a muscle. I called my husb...

My story with Familial Aortic Dissection

by AllisonMO published 5 months ago
5 comments

After completing a set of lunges and shoulder presses and a set of pull-ups, I felt a tearing pain go across my chest, and I went to the floor. My...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.