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What is Amyloidosis ?

Amyloidosis is a rare systemic disease caused by deposits of amyloid protein fibrils in one or more organs, causing the organs to malfunction. There are three main types: Primary Amyloidosis (AL), Secondary Amyloidosis (AA) and Familial Amyloidosis (FAP), which is the genetic form.                                             

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More members stories

Latest Member Stories


by Franck published 3 months ago 7 comments

Hello everybody,
Affected or not by this disease, I ignored it, until it struck me.

Here is my story:
After a walk in the mountains in Augus...


by elwisduran published 4 months ago 9 comments

A few days ago I talked a Dr. from Alnylam pharmaceutical, who showed a lot of interest in our case. I didn't know there were people suffering this...