Welcome - Amyloidosis Community

What is Amyloidosis ?

Amyloidosis is a rare systemic disease caused by deposits of amyloid protein fibrils in one or more organs, causing the organs to malfunction. There are three main types: Primary Amyloidosis (AL), Secondary Amyloidosis (AA) and Familial Amyloidosis (FAP), which is the genetic form.                                             

Source: Participating patient organizations visible below

Amyloidosis Resources

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Historia de la Asociación de enfermos de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios de España

by FMFSPAIN published 2 days ago No comment

Hola a todos. Somos la Asociación de enfermos de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios de España. Me gustaría contar nues...

Rare Disease Day 2015

by RareConnect team published about 1 month ago 2 comments

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...