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What is Amyloidosis ?

Amyloidosis is a rare systemic disease caused by deposits of amyloid protein fibrils in one or more organs, causing the organs to malfunction. There are three main types: Primary Amyloidosis (AL), Secondary Amyloidosis (AA) and Familial Amyloidosis (FAP), which is the genetic form.                                             

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Latest Member Stories

Cardiac Amyloidosis

by sandrablundell published 5 days ago No comment

Hi.... I live in Essex, UK and have just been diagnosed with Cardiac Amyloidosis. I have just turned 50, have four children ranging from 16-28, and...

living with amyloidosis

by angie62 published 15 days ago One comment

in october 2013 i had a heart scan, then i had another 2 within weeks of each other. on the 5th of december i was given the results and was told i ...