Welcome - Alstrom Syndrome Community
What is Alstrom Syndrome ?
Alström Syndrome is a Ciliopathy, it causes childhood blindness, hearing loss, dilated cardiomyopathy, obesity, type two diabetes, kidney failure and many associated problems.
Source: Participating patient organizations visible below
Alstrom Syndrome Resources
by RareConnect team
published about 1 month ago
Rare Disease Day takes place on the last day of February each year.
The main objective of Rare Disease Day is to raise awareness amongst the gen...
published about 1 year ago
My son was born with Alstrom syndrome. He is 16 years old. We live in Russia.
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.