Welcome - Alstrom Syndrome Community
What is Alstrom Syndrome ?
Alström Syndrome is a Ciliopathy, it causes childhood blindness, hearing loss, dilated cardiomyopathy, obesity, type two diabetes, kidney failure and many associated problems.
Source: Participating patient organizations visible belowAlstrom Syndrome Resources
Latest Member Stories
Looking at the photo today and knowing the horrors my children faced in later life because of not being diagnosed -is sad- but also empowering to h...