Welcome - Alstrom Syndrome Community
What is Alstrom Syndrome ?
Alström Syndrome is a Ciliopathy, it causes childhood blindness, hearing loss, dilated cardiomyopathy, obesity, type two diabetes, kidney failure and many associated problems.
Source: Participating patient organizations visible below
Alstrom Syndrome Resources
published 2 months ago
Adorable twins Katie and Hannah were diagnosed with Alström Syndrome when they were 4 years old.
Hannah was very ill for the first year of her ...
published 3 months ago
On arrival at the hospital I was asked to leave to allow the doctor to examine him and take an x-ray. As I left the room Kion stopped breathing fo...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.