Welcome - Alstrom Syndrome Community
What is Alstrom Syndrome ?
Alström Syndrome is a Ciliopathy, it causes childhood blindness, hearing loss, dilated cardiomyopathy, obesity, type two diabetes, kidney failure and many associated problems.
Source: Participating patient organizations visible belowAlstrom Syndrome Resources
Latest Member Stories
Looking at the photo today and knowing the horrors my children faced in later life because of not being diagnosed -is sad- but also empowering to h...
Partners and Patient Groups
RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.