Welcome - Alstrom Syndrome Community
What is Alstrom Syndrome ?
Alström Syndrome is a Ciliopathy, it causes childhood blindness, hearing loss, dilated cardiomyopathy, obesity, type two diabetes, kidney failure and many associated problems.
Source: Participating patient organizations visible below
Alstrom Syndrome Resources
published about 1 month ago
My son was born with Alstrom syndrome. He is 16 years old. We live in Russia.
published 3 months ago
The Alström Golf Classic was hosted by the Johnston Family from Lubbock, Texas. Their 4-year old daughter, Bryce, was diagnosed with Alström Syn...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.