Other Quality Rare Disease Resources

Written by RareConnect team, published over 2 years ago.

 

 

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 646 rare disease patient organisations in 60 countries covering over 4000 diseases.

 

 

Orphanet is the reference portal for information on rare diseases and orphan drugs.

Written by RareConnect team, published over 2 years ago.

Comments are closed.