Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

Read Two Alstrom Children un-diagnosed for 15 & 18 years respectively

Two Alstrom Children un-diagnosed for 15 & 18 years respectively - My two children were un-diagnosed... Read more >

Events

  • 8th International Congress of Familial Mediterranean Fever and Systemic Autoinflammatory Diseases 8th International Congress of Familial Mediterranean ... More >
  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >
  • Meeting of European Behcet Patients in London 11th and 12th September 2015 Meeting of European Behcet Patients in London 11th an... More >