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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Member Story

Read Eliot's Journey

Eliot's Journey - From pseudo-tumor to Alternating Hemiplegia of Childhood (AHC) This is Eliot... Read more >


  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >
  • International MSA Symposium International MSA Symposium - ’International Sympos... More >
  • Meeting of European Behcet Patients in London 11th and 12th September 2015 Meeting of European Behcet Patients in London 11th an... More >