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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 54 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Armenian girl diagnosed a few months ago

Armenian girl diagnosed a few months ago - Recently diagnosed. Parents are in denial. The topic is... Read more >

Events

  • International VHL Medical Symposium 2014 International VHL Medical Symposium 2014 - Dr. Jose d... More >
  • 2014 ECD-GA PATIENT AND FAMILY GATHERING 2014 ECD-GA PATIENT AND FAMILY GATHERING - Dear ECD... More >
  • 2nd Annual International ECD Patient and Family Gathering 2nd Annual International ECD Patient and Family Gathe... More >