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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

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Member Story

Read Timo, 50 years, male, Swedish, Aorticdissection Type A

Timo, 50 years, male, Swedish, Aorticdissection Type A - Two years ago (2012 October) I got ill with a... Read more >

Events

  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >
  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >
  • EDNF 2015 Annual Learning Conference EDNF 2015 Annual Learning Conference - The EDNF 2015 ... More >