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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Acute aortic dissection at 2,700 meters

Acute aortic dissection at 2,700 meters - Thanks to an excellent emergency service, I managed to survive... Read more >

Events

  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >
  • SCIENTIFIC MEETING 2015: MAST CELLS AND URTICARIA SCIENTIFIC MEETING 2015: MAST CELLS AND URTICARIA - F... More >
  • MEN Patient and Family Free Seminar MEN Patient and Family Free Seminar - We're exci... More >