Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

Read Raya's Story

Raya's Story - We are the parents to two children. Our three year old daughter Raya was diagnosed... Read more >

Events

  • 8th International Congress of Familial Mediterranean Fever and Systemic Autoinflammatory Diseases 8th International Congress of Familial Mediterranean ... More >
  • Second UK aHUS Patients' Conference Second UK aHUS Patients' Conference - Just over ... More >
  • Dysmelia Experts' Forum Conference Dysmelia Experts' Forum Conference - We have ple... More >