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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Events

  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >
  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >
  • Second World Conference on Congenital Disorders of Glycosylation (CDG) for Families and Professionals Second World Conference on Congenital Disorders of Gl... More >