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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 54 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read At Last, Narcolepsy Doesn’t Define Me

At Last, Narcolepsy Doesn’t Define Me - At 5 years old, my already shattered life fell further apart.... Read more >

Events

  • Just Walk to Reverse Rett 2014 Just Walk to Reverse Rett 2014 - Held on Saturday 10t... More >
  • 16th International conference on Behçet's Disease 16th International conference on Behçet's Disea... More >
  • Multiple Endocrine Neoplasia Support Educational Seminar, in collaboration with Mayo Clinic Multiple Endocrine Neoplasia Support Educational Semi... More >