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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 54 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read At Last, Narcolepsy Doesn’t Define Me

At Last, Narcolepsy Doesn’t Define Me - At 5 years old, my already shattered life fell further apart.... Read more >

Events

  • EDNF Annual Learning Conference EDNF Annual Learning Conference - Save the date! The... More >
  • 2014 ECD-GA PATIENT AND FAMILY GATHERING 2014 ECD-GA PATIENT AND FAMILY GATHERING - Dear ECD... More >
  • Glycobiology and glycochemistry: Applications to human health and disease Glycobiology and glycochemistry: Applications to huma... More >