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Read From Diagnosis to Advocate

From Diagnosis to Advocate - Being Diagnosed with Mucous Membrane Pemphigoid changed my life forever. In... Read more >


  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >
  • International MSA Symposium International MSA Symposium - ’International Sympos... More >
  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >