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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read I could feel that I was dying ...

I could feel that I was dying ... - It was in July 2014 ... I had been sick and unable to eat for over 3... Read more >

Events

  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >
  • 2ème colloque scientifique francophone Tremblement essentiel et syndromes apparentés 2ème colloque scientifique francophone Tremblement e... More >
  • EDNF 2015 Annual Learning Conference EDNF 2015 Annual Learning Conference - The EDNF 2015 ... More >