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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Two Alstrom Children un-diagnosed for 15 & 18 years respectively

Two Alstrom Children un-diagnosed for 15 & 18 years respectively - My two children were un-diagnosed... Read more >

Events

  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >
  • Rare Blood Disorders Education Day Rare Blood Disorders Education Day - Information on ... More >
  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >