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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Member Story

Read Acute aortic dissection at 2,700 meters

Acute aortic dissection at 2,700 meters - Thanks to an excellent emergency service, I managed to survive... Read more >

Events

  • 2ème colloque scientifique francophone Tremblement essentiel et syndromes apparentés 2ème colloque scientifique francophone Tremblement e... More >
  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >
  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >