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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Events

  • 4th European Congress on Rett Syndrome 4th European Congress on Rett Syndrome - This 4th Eur... More >
  • Second UK aHUS Patients' Conference Second UK aHUS Patients' Conference - Just over ... More >
  • 8th International Congress of Familial Mediterranean Fever and Systemic Autoinflammatory Diseases 8th International Congress of Familial Mediterranean ... More >