Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

No recent member story

Events

  • International Dermatology Patient Organization Conference 2015 International Dermatology Patient Organization Confer... More >
  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >
  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >