Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

Read Alex

Alex - Alex was born in March 1997 a healthy, happy baby boy. For the first year of his life he thrived... Read more >

Events

  • International Dermatology Patient Organization Conference 2015 International Dermatology Patient Organization Confer... More >
  • Managing Your EDS Managing Your EDS - EDS UK will be holding a conferen... More >
  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >