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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Eliot's Journey

Eliot's Journey - From pseudo-tumor to Alternating Hemiplegia of Childhood (AHC) This is Eliot... Read more >

Events

  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >
  • International MSA Symposium International MSA Symposium - ’International Sympos... More >
  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >