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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Events

  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >
  • 4th European Congress on Rett Syndrome 4th European Congress on Rett Syndrome - This 4th Eur... More >
  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >