Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

Read Raya's Story

Raya's Story - We are the parents to two children. Our three year old daughter Raya was diagnosed... Read more >

Events

  • International Dermatology Patient Organization Conference 2015 International Dermatology Patient Organization Confer... More >
  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >
  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >