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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read The start of a new life

The start of a new life - I think porphyria began in adolescence but I was not diagnosed at the time. My... Read more >

Events

  • Dysmelia Experts' Forum Conference Dysmelia Experts' Forum Conference - We have ple... More >
  • 4th European Congress on Rett Syndrome 4th European Congress on Rett Syndrome - This 4th Eur... More >
  • Second World Conference on Congenital Disorders of Glycosylation (CDG) for Families and Professionals Second World Conference on Congenital Disorders of Gl... More >