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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Acute aortic dissection at 2,700 meters

Acute aortic dissection at 2,700 meters - Thanks to an excellent emergency service, I managed to survive... Read more >

Events

  • Rare Blood Disorders Education Day Rare Blood Disorders Education Day - Information on ... More >
  • Second World Conference on Congenital Disorders of Glycosylation (CDG) for Families and Professionals Second World Conference on Congenital Disorders of Gl... More >
  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >