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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

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Member Story

Read Timo, 50 years, male, Swedish, Aorticdissection Type A

Timo, 50 years, male, Swedish, Aorticdissection Type A - Two years ago (2012 October) I got ill with a... Read more >

Events

  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >
  • Second UK aHUS Patients' Conference Second UK aHUS Patients' Conference - Just over ... More >
  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >