Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

Read Max's story with NF1

Max's story with NF1 - Max's story may be very similar to many other children with rare diseases. A... Read more >

Events

  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >
  • MEN Patient and Family Free Seminar MEN Patient and Family Free Seminar - We're exci... More >
  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >