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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read KS Patient seeking help

KS Patient seeking help - I was diagnosed with Kallmann Syndrome at 23 - am now 30. I just thought I was... Read more >

Events

  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >
  • 4th European Congress on Rett Syndrome 4th European Congress on Rett Syndrome - This 4th Eur... More >
  • SCIENTIFIC MEETING 2015: MAST CELLS AND URTICARIA SCIENTIFIC MEETING 2015: MAST CELLS AND URTICARIA - F... More >