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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 74 rare disease communities with more to come soon!

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Member Story

Read Venezuelan with Apert Syndrome

Venezuelan with Apert Syndrome - Hello all, my name is Francisco from Venezuela. I was born on the... Read more >

Events

  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >
  • Managing Your EDS Managing Your EDS - EDS UK will be holding a conferen... More >
  • Incontro annuale della Associazione Italiana Famiglie VHL onlus Incontro annuale della Associazione Italiana Famiglie... More >