Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

Read Raya's Story

Raya's Story - We are the parents to two children. Our three year old daughter Raya was diagnosed... Read more >

Events

  • 4th European Congress on Rett Syndrome 4th European Congress on Rett Syndrome - This 4th Eur... More >
  • Dysmelia Experts' Forum Conference Dysmelia Experts' Forum Conference - We have ple... More >
  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >