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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Acute aortic dissection at 2,700 meters

Acute aortic dissection at 2,700 meters - Thanks to an excellent emergency service, I managed to survive... Read more >

Events

  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >
  • Dysmelia Experts' Forum Conference Dysmelia Experts' Forum Conference - We have ple... More >
  • International MSA Symposium International MSA Symposium - ’International Sympos... More >