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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 72 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Rare Disease Day 2015

Rare Disease Day 2015 - Rare Disease Day will be held on February 28th, 2015 with events held in over 80... Read more >

Events

  • International Dermatology Patient Organization Conference 2015 International Dermatology Patient Organization Confer... More >
  • Canadian Association for Porphyria Annual General Meeting Canadian Association for Porphyria Annual General Mee... More >
  • EDNF 2015 Annual Learning Conference EDNF 2015 Annual Learning Conference - The EDNF 2015 ... More >