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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Our life

Our life - A journey of love life and all it's messy details 12 years ago I met the man of my dreams and... Read more >

Events

  • International Dermatology Patient Organization Conference 2015 International Dermatology Patient Organization Confer... More >
  • EDNF 2015 Annual Learning Conference EDNF 2015 Annual Learning Conference - The EDNF 2015 ... More >
  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >