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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Alex

Alex - Alex was born in March 1997 a healthy, happy baby boy. For the first year of his life he thrived... Read more >

Events

  • EDNF 2015 Annual Learning Conference EDNF 2015 Annual Learning Conference - The EDNF 2015 ... More >
  • 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals 2nd World Conference on Congenital Disorders of Glyco... More >
  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >