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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Member Story

Read KS Patient seeking help

KS Patient seeking help - I was diagnosed with Kallmann Syndrome at 23 - am now 30. I just thought I was... Read more >

Events

  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >
  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >
  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >