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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 74 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Venezuelan with Apert Syndrome

Venezuelan with Apert Syndrome - Hello all, my name is Francisco from Venezuela. I was born on the... Read more >

Events

  • Second UK aHUS Patients' Conference Second UK aHUS Patients' Conference - Just over ... More >
  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >
  • Second World Conference on Congenital Disorders of Glycosylation (CDG) for Families and Professionals Second World Conference on Congenital Disorders of Gl... More >