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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Eliot's Journey

Eliot's Journey - From pseudo-tumor to Alternating Hemiplegia of Childhood (AHC) This is Eliot... Read more >

Events

  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >
  • Elijah’s First International Conference:The Living University of Postural Care Elijah’s First International Conference:The Living ... More >
  • MEN Patient Seminar at Mayo Clinic Sept. 14 MEN Patient Seminar at Mayo Clinic Sept. 14 - Registr... More >