Welcome!

Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

Join Now It’s Free!

Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 72 rare disease communities with more to come soon!

Select your community

Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

Join now

Member Story

Read Rare Disease Day 2015

Rare Disease Day 2015 - Rare Disease Day will be held on February 28th, 2015 with events held in over 80... Read more >

Events

  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >
  • Canadian Association for Porphyria Annual General Meeting Canadian Association for Porphyria Annual General Mee... More >
  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >