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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 72 rare disease communities with more to come soon!

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Member Story

Read Faye

Faye - After nearly 12 months of scans and appointments, I was diagnosed with pseudomyxoma peritonei... Read more >


  • Managing Your EDS Managing Your EDS - EDS UK will be holding a conferen... More >
  • 6th European Narcolepsy Day 6th European Narcolepsy Day - Hosted by the German Na... More >
  • Canadian Association for Porphyria Annual General Meeting Canadian Association for Porphyria Annual General Mee... More >