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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Member Story

Read Two Alstrom Children un-diagnosed for 15 & 18 years respectively

Two Alstrom Children un-diagnosed for 15 & 18 years respectively - My two children were un-diagnosed... Read more >

Events

  • Second World Conference on Congenital Disorders of Glycosylation (CDG) for Families and Professionals Second World Conference on Congenital Disorders of Gl... More >
  • 2ème colloque scientifique francophone Tremblement essentiel et syndromes apparentés 2ème colloque scientifique francophone Tremblement e... More >
  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >