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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read NEW CHALLENGE

NEW CHALLENGE - It isn't that much of a story, but kind of a preview. I'll take on a new challenge... Read more >

Events

  • EDNF 2015 Annual Learning Conference EDNF 2015 Annual Learning Conference - The EDNF 2015 ... More >
  • Second World Conference on Congenital Disorders of Glycosylation (CDG) for Families and Professionals Second World Conference on Congenital Disorders of Gl... More >
  • Second UK aHUS Patients' Conference Second UK aHUS Patients' Conference - Just over ... More >