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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Our life

Our life - A journey of love life and all it's messy details 12 years ago I met the man of my dreams and... Read more >

Events

  • 4th European Congress on Rett Syndrome 4th European Congress on Rett Syndrome - This 4th Eur... More >
  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >
  • 1st European Congress on Hereditary ATTR  amyloidosis European Congress on ATTR 1st European Congress on Hereditary ATTR amyloidosis... More >