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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 74 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Venezuelan with Apert Syndrome

Venezuelan with Apert Syndrome - Hello all, my name is Francisco from Venezuela. I was born on the... Read more >

Events

  • ozED - Family Camphrence 2015 ozED - Family Camphrence 2015 - ozED - Australian Ect... More >
  • International Dermatology Patient Organization Conference 2015 International Dermatology Patient Organization Confer... More >
  • 8th International NBIA Disorders Association Family Conference 8th International NBIA Disorders Association Family C... More >