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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 76 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Our life

Our life - A journey of love life and all it's messy details 12 years ago I met the man of my dreams and... Read more >

Events

  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >
  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >
  • 8th International Congress of Familial Mediterranean Fever and Systemic Autoinflammatory Diseases 8th International Congress of Familial Mediterranean ... More >