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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Eliot's Journey

Eliot's Journey - From pseudo-tumor to Alternating Hemiplegia of Childhood (AHC) This is Eliot... Read more >


  • Rare Blood Disorders Education Day Rare Blood Disorders Education Day - Information on ... More >
  • EDS International Symposium EDS International Symposium - EDS UK and the Ehlers-D... More >
  • Dysmelia Experts' Forum Conference Dysmelia Experts' Forum Conference - We have ple... More >