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Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 54 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Armenian girl diagnosed a few months ago

Armenian girl diagnosed a few months ago - Recently diagnosed. Parents are in denial. The topic is... Read more >

Events

  • 2nd Annual International ECD Patient and Family Gathering 2nd Annual International ECD Patient and Family Gathe... More >
  • Glycobiology and glycochemistry: Applications to human health and disease Glycobiology and glycochemistry: Applications to huma... More >
  • 8th International Cystinosis Congress-Beyond Borders 8th International Cystinosis Congress-Beyond Borders ... More >