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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 54 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Armenian girl diagnosed a few months ago

Armenian girl diagnosed a few months ago - Recently diagnosed. Parents are in denial. The topic is... Read more >

Events

  • Pitt Hopkins UK Day and Chromosome 18 Europe Conference Pitt Hopkins UK Day and Chromosome 18 Europe Conferen... More >
  • aHUS Canada Meeting aHUS Canada Meeting - aHUS Canada is pleased to invit... More >
  • 2nd Annual International ECD Patient and Family Gathering 2nd Annual International ECD Patient and Family Gathe... More >