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Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally. Come in and learn more >

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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Join RareConnect

Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Eliot's Journey

Eliot's Journey - From pseudo-tumor to Alternating Hemiplegia of Childhood (AHC) This is Eliot... Read more >

Events

  • 2ème colloque scientifique francophone Tremblement essentiel et syndromes apparentés 2ème colloque scientifique francophone Tremblement e... More >
  • Dysmelia Experts' Forum Conference Dysmelia Experts' Forum Conference - We have ple... More >
  • MEN Patient Seminar at Mayo Clinic Sept. 14 MEN Patient Seminar at Mayo Clinic Sept. 14 - Registr... More >