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Our Communities

Our Communities

Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 72 rare disease communities with more to come soon!

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Join RareConnect

Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Faye

Faye - After nearly 12 months of scans and appointments, I was diagnosed with pseudomyxoma peritonei... Read more >

Events

  • Canadian Association for Porphyria Annual General Meeting Canadian Association for Porphyria Annual General Mee... More >
  • 6th European Narcolepsy Day 6th European Narcolepsy Day - Hosted by the German Na... More >
  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >