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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 77 rare disease communities with more to come soon!

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Meet and interact with others who share your condition in a supportive and friendly environment. Find the information and support you need and share your own experiences.

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Member Story

Read Two Alstrom Children un-diagnosed for 15 & 18 years respectively

Two Alstrom Children un-diagnosed for 15 & 18 years respectively - My two children were un-diagnosed... Read more >

Events

  • International Conference “Sanfilippo Syndrome and Related Lysosomal Storage Diseases International Conference “Sanfilippo Syndrome and R... More >
  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >
  • Meeting of European Behcet Patients in London 11th and 12th September 2015 Meeting of European Behcet Patients in London 11th an... More >