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Find an online community for your area of interest. Meet, interact and learn from your peers and medical experts. We have 75 rare disease communities with more to come soon!

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Member Story

Read AMYLOIDOSIS IN VENEZUELA

AMYLOIDOSIS IN VENEZUELA - LOOKING FOR OTHER PATIENTS WITH AMYLOIDOSIS A few days ago I talked a Dr.... Read more >

Events

  • Managing Your EDS Managing Your EDS - EDS UK will be holding a conferen... More >
  • 8th International Congress of Familial Mediterranean Fever and Systemic Autoinflammatory Diseases 8th International Congress of Familial Mediterranean ... More >
  • 3rd Annual International Erdheim-Chester Disease Patient and Family Gathering 3rd Annual International Erdheim-Chester Disease Pati... More >