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Canadian Association for Porphyria
Organization
The mission of the Canadian Association for Porphyria/Association Canadienne de Porphyrie is: -to promote health by providing individuals with porphyria access to related counselling, information, and group support programs. -to create and maintain a Canadian porphyria patient registry which will centralize information, and enable the provision of specialized information and services to the porphyria population. -to increase the medical profession’s and the public’s knowledge about porphyria through a website, seminars, presentations, educational booths, pamphlets, and information forums.

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