Dutch Rett Syndrome Foundation

Hier ist eine Auswahl von Informationen von Patienten & Fachleuten, um die Rett-Syndrom besser verstehen zu können.

Website: http://stichtingterre.nl/home/

- supports basic and applied research projects that lead to the development of treatments that reduce symptoms and open up new pathways to the cure of Rett syndrome.
- is co-founder of the Dutch Rett-expertise centre located in Maastricht, The Netherlands.
- is a mediator between patients, parents, caregivers and medical professionals and informs all people involved about the latest developments in Rett syndrome research.