Ontario Rett Syndrome Association

Hier ist eine Auswahl von Informationen von Patienten & Fachleuten, um die Rett-Syndrom besser verstehen zu können.

Website: http://rett.ca/

The Ontario Rett Syndrome Association (O.R.S.A.) is a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested support agencies and individuals. The association funds Canadian research projects, two Rett Syndrome Clinics, a resource centre and the Canadian Rett Syndrome Registry. O.R.S.A. advocates to the needs of individuals with Rett syndrome and their families provincially and nationally. P.O. Box 50030 London, ON N6A 6H8 | Telephone: (519) 474-6877