Russian Rett Syndrome Association

Hier ist eine Auswahl von Informationen von Patienten & Fachleuten, um die Rett-Syndrom besser verstehen zu können.

Website: http://www.rettsyndrome.ru/

The association was created for the purpose of assistance to carrying out research on problems of diagnostics and rehabilitation of RS; rendering of information and advisory services and help to families with RS people, and also to institutions which promote medical and pedagogical scientific research of the syndrome and assist people with RS and their families.

rettsyndrome@mail.ru