British Porphyria Association

Hier ist eine Auswahl von Informationen von Patienten & Fachleuten, um die Porphyrie besser verstehen zu können.

Website: http://www.porphyria.org.uk/

The aim of the British Porphyria Association (BPA) is to reach out to as many people as possible - patients, doctors, hospitals and research establishments in order to improve the understanding of this condition. Support is provided in the UK through meetings, help-lines, and the dissemination of information. Helpline: 01474 369 231 | Email: helpline@porphyria.org.uk or webmaster@porphyria.org.uk | Registered address is: British Porphyria Association 136 Devonshire Rd Durham City