Von Hippel-Lindau community

Von Hippel Lindau (VHL) is a rare genetic cancer syndrome, an alteration in the VHL-tumor-suppressor gene, which puts the individual at increased risk of developing tumors in various organs throughout life.

VHLFA Annual Meeting and Conference 2011

Written by VHL Family Alliance, published 11 months ago.

Jonasch - Clinical Trials and New Directions in VHL from VHL Family Alliance on Vimeo.

 

From VHL Family Alliance Director Joyce Graff:
"The Houston meeting was wonderful! Some 70 people met at the M.D. Anderson Cancer Center to hear 8 outstanding speakers and exchange stories and hugs. We all had a marvelous time -- and we missed you! We hope you will plan to attend a gathering in the near future."

 

"Videos of the conference are being prepared and are beginning to appear now.  These are excellent presentations that will be valuable for physicians as well as patients. 

Watch

http://vhl.org/videos/2011-houston and http://www.youtube.com/vhlfa."

Written by VHL Family Alliance, published 11 months ago.

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