Multiple Myeloma community

Here's a selection of information from patients & professionals to better understand Multiple Myeloma.

Multiple Myeloma resources

Multiple Myeloma Frequently Asked Questions

Here are some of the most frequently asked questions and their answers:


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What causes Myeloma?

The exact cause or causes of myeloma are unknown. There are a number of suspected risks or trigger factors such as: exposure to certain types of industrial and agricultural chemicals (with benz...

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How common is Multiple Myeloma?

Multiple myeloma is the second most frequent form of malignant bone marrow disease and belongs to the non-Hodgkin group of lymphomas. It is a relatively rare form of cancer that accounts for roughl...

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What is Myeloma?

Multiple myeloma (also referred to as plasmacytoma or Morbus Kahler) is a malignant degeneration of the plasma cells. Reproduction of the cells in the bone marrow gets out of control.
* The pa...

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Multiple Myeloma Patient Groups

These are patient organisations that have experience and expertise in Multiple Myeloma. They are supporters of this website. Contact them for more information on their activities.

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  • European Myeloma Platform

    European Myeloma Platform (EMP) is a European umbrella organisation of myeloma patient support groups. In accordance with the spirit of its basic motive “Patients for Patients” it is the only pan-European myeloma patient organisation that is run by patients and their relatives for other patients, and it is politically and financially independent

    Contact European Myeloma Platform

  • Myeloma UK

    Registered as a charity in 1997, Myeloma UK is the leading UK cancer organisation dealing specifically with myeloma and its related disorders.

    Contact Myeloma UK

  • Myeloma Euronet

    Myeloma Euronet, a non-profit network organization of multiple myeloma patient groups, is a European initiative dedicated to raising the awareness of multiple myeloma, an increasingly common form of bone marrow cancer. Myeloma Euronet provides information on the diagnosis, treatment and care of persons living with multiple myeloma and supports its member organisations in the fulfilment of their missions. Myeloma Euronet also advocates, both independently and in collaboration with organisations with similar objectives, on behalf of those affected by multiple myeloma. Myeloma Euronet was launched at the 10th Congress of the European Hematology Association (EHA) in Stockholm on 3 June 2005.

    Contact Myeloma Euronet

  • Myeloma Patients Europe

    Contact Myeloma Patients Europe

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Multiple Myeloma Documents

Resources, documents and detailed informations on Multiple Myeloma. In this section you can download brochures, ask for printed documents or find useful links.

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Multiple Myeloma Articles

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Myeloma UK InfoLine

Call free on - 0800 980 3332 or 1800 937 773 from Ireland

The Myeloma UK Information Specialists are available Monday - Friday 9am - 5pm (closed weekends and most public holidays).

Facts ab...

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Multiple Myeloma Clinical Trials

A collection of useful links on clinical trials from various MM patient organisations and authorities...

Myeloma Euronet:

http://www.myeloma-euronet.org/en/multiple-myeloma/studies-in-multi...

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Orphanet: Multiple Myeloma

Multiple myeloma (MM) is a malignant tumor of plasma cells characterized by overproduction of abnormal plasma cells in the bone marrow and manifested by skeletal destruction, bone pain, and presenc...

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Multiple Myeloma Events

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  • May 2012

  • 6th European Conference on Rare Diseases & Orphan Products (ECRD 2012)

    From 23 to 25 May 2012

    MCE Conference Centre in Brussels, Belgium

    More info

  • June 2012

  • European Human Genetics Conference 2012

    From 23 to 26 June 2012

    Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe. The Society will encourage and seek to integrate research and its translation into clinical benefits and professional and public education in all areas of human genetics.

    More info

  • November 2012

  • 62nd Annual Meeting of the American Society of Human Genetics (ASHG)

    From 6 to 9 November 2012

    "We have 24 invited slots available and anticipate receiving over 120 proposals. We encourage you to provide as much information as possible in order to assist the Program Committee in their decision making. The ASHG 2012 Program Committee encourages the submission of debate or panel style sessions on thought-provoking or controversial topics."

    More info

Multiple Myeloma community news

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